We at Stanford Parkinson's Community Outreach occasionally attend a webinar and share our notes. Notes from excellent PD-focused webinars are often posted to
our blog.
Denise
http://med.stanford.edu/parkinsons.html *******************************************************************************
Monday, July 1, 10am
Vision Rehab in Movement Disorders Speaker: Cynthia Greenacre, PhD
Host: Philadelphia and Richmond Veterans Administration (VA) Parkinson's Disease Research, Education and Clinical Center (PADRECC)
At the meeting time,
use this link to join:
Meeting ID: 227 305 847 316
Passcode: TXmDJU
Telephone: 872-701-0185 (phone conference ID: 666 709 920#)
Contact Jessica Kaplan,
[email protected], 804-675-5931, Philadelphia and Richmond VA with questions.
We have no information about recording this event.
********************
Monday, July 1, 12pm
Topic Unknown (at the time this list was prepared)
No description available. This webinar is part of the "Everything Parkinson's" monthly series. The topic may not be specific to PD, though the host organization is PD-focused.
Host: Pacific Movement Disorders Center, Pacific Neuroscience Institute (PNI), Santa Monica, CA
At the meeting time, use the link to join:
bit.ly/PD-Webinars Webinar ID: 821 8048 1494
Telephone: 669-900-6833
Questions? Contact Giselle Tamula,
[email protected], 310-582-7433
The webinar recording will be posted on the Movement Disorders section of the PNI Health and Wellness webinars page:
https://www.pacificneuroscienceinstitute.org/resources/webinars/ ********************
Monday, July 1, 2:30pm
"Parkinsonian Democracy" Description: A trial lawyer, author, and person with Parkinson's will discuss his novel that takes readers on an educational adventure - by putting PD on trial and making the case for treatment options that go beyond the standard pharmacological response.
Speaker: Jerry Hurtubise, J.D.
Host: PD-Connect
Registration webpage:
https://us02web.zoom.us/meeting/register/tZIvdO2upz4jG93YzYSv0RECAyaAfeoiod4L The webinar recording will be posted to the PD-Connect YouTube channel:
https://www.youtube.com/channel/UCQuo2tv9QdgwIad29s5JSow ********************
Wednesday, July 3, 10am
Understanding Deep Brain Stimulation (DBS) and MRI Guided Focused Ultrasound Description: The speaker will talk about DBS and high intensity focused ultrasound (HIFU) as treatment options for PD, essential tremor and dystonia. Q&A follows.
Speaker: Katherine Baich-Colon, RN, Hartford Healthcare, Hartford, CT
Host: Hartford Healthcare
Registration webpage:
https://hartfordhealthcare.org/health-wellness/classes-events/event-details?id=2656&occ=283821 This webinar is offered monthly and is not recorded.
********************
Wednesday, July 3, 12pm
Swallowing Safely with a Movement Disorder 
Description: The speaker will discuss simple tests for dysphagia, altering the texture of foods and liquids to ease swallowing, swallowing strategies like the chin tuck, head turn, etc., and treatments for improving swallowing and how they work, including dysphagia exercises, electrical stimulation, deep brain stimulation, and Lee Silverman Voice Treatment (LSVT).
Speaker: Michele Demarest, MS, CCC-SLP, speech language pathologist
Host: PMD Alliance
Registration webpage:
https://events.blackthorn.io/en/2EmH006/g/cSZj452wMK/swallowing-safely-with-a-movement-disorder-4a22UUZdRV/overview The webinar recording may be posted to the PMD Alliance YouTube channel:
https://www.youtube.com/channel/UCm_sAjRqhAaiutx2B9dOqng Wednesday, July 10, 10am
Self-Motivation and Engaging in Meaningful Activity Description: The speaker discusses how we bridge self-motivation with meaningful activity tailored to an individual's needs and preferences. She will explore tasks of daily living, physical function, and the importance of engaging in meaningful activity. Part of the Wellness Wednesday webinar series.
Speaker: Julia Wood, OT, occupational therapist, Lewy Body Dementia Association
Host: Parkinson's Foundation (PF)
Registration webpage:
https://secure3.convio.net/prkorg/site/Calendar?id=112951&view=RSVP& The webinar recording will be posted to the PF YouTube channel in the Wellness Wednesday playlist:
https://www.youtube.com/playlist?list=PLDGRDRM479GuzZjOzPl6Pm8MpwoGfIEpu ********************
Wednesday, July 10, 12pm
Making Cooking Easier for People with PD Description: The speaker will discuss how to make kitchen tasks like chopping, stirring, and maneuvering around the stove easier.
Speaker: Christine Ferguson, PhD, RD, LD, registered dietitian
Host: Brian Grant Foundation (BGF)
Registration webpage:
https://us02web.zoom.us/webinar/register/WN_EpNru8BTRKyu8up7qA_JMA#/ The webinar recording will be posted to the BGF YouTube channel:
https://www.youtube.com/channel/UCFrXMx8ij2LdZtjOevZ1R2w ********************
Wednesday, July 10, 12pm
Parkinson's & Your Vision Description: The speaker will talk about what a healthy eye is, some common eye problems that develop with aging, and Parkinson's effects on vision.
Speaker: Pedro Rivera-Velázquez, MD, ophthalmologist, Clinton, MD
Host: PMD Alliance
Registration webpage:
https://events.blackthorn.io/en/2EmH006/g/cSZj452wMK/a-real-eye-opener-parkinsons-and-your-vision-4a22UUZdo5/overview The webinar recording may be posted to the PMD Alliance YouTube channel:
https://www.youtube.com/channel/UCm_sAjRqhAaiutx2B9dOqng *******************
Friday, July 12, 11am
Atypical Parkinsonisms Description: The speaker will discuss atypical parkinsonisms, which present with some of the signs and symptoms of PD, but generally do not respond well to drug treatment with levodopa.
Speaker: Yvette Bordelon, MD, PhD, movement disorders specialist, Cedars Sinai Medical Center, Los Angeles
Host: Parkinson's Community Los Angeles (PCLA)
Registration website:
https://us02web.zoom.us/meeting/register/tZYtfuGgrjkuHdeT49RAyKA79AMi4n7Jr-o1#/ The webinar recording will be posted to the PCLA YouTube channel:
https://www.youtube.com/channel/UC-J9ub04IQxlSliKrTQ6nOQ/videos *******************
sábado 13 de julio, 10:30am-12:30pm
Introducción a la Enfermedad de Parkinson para Hispanohablantes Descripción: El ponente abordará los fundamentos del Parkinson, desde sus síntomas característicos hasta sus tratamientos. Explorarás cómo afecta la vida diaria y cómo abordar los desafíos que plantea esta enfermedad neurodegenerativa.
Oradora: Marta San Luciano, MD, especialista en trastornos del movimiento, UCSF
Anfitriona: PD Active, Berkeley, CA
Inscripción:
https://us06web.zoom.us/webinar/register/WN_BajZkwfCSyecwO2QjtQ1IA#/ La grabación del seminario web se puede publicar en el canal de YouTube de PD Active:
https://www.youtube.com/channel/UC0cUYr7zIyj7XzPuYXdePpA/playlists ********************
Tuesday, July 16, 4pm
Adventures with YOPD Audience: Young Onset
Description: A couple will talk about their two-year adventure living in a 22-foot trailer while traveling around the USA. They will share about the lessons learned and challenges encountered along the way, including the benefits of living with less stuff while managing PD, the energy it takes to travel, and living in the moment with progressing disease and age.
Speakers:
Kat Hill, diagnosed with YOPD age 48
Ken Hill, YOPD care partner
Host: Young Onset Parkinson's Network (YOPN)
Registration webpage:
https://yopnetwork.org/event-5679176?
The webinar recording will be posted to the YOPN website:
https://yopnetwork.org/Speaker-Series ********************
Wednesday, July 17, 10am
Exploring Next Steps in Care Description: The speaker will share tools to help you decide when it's time to ask for outside help. Learn what you need to know to find the right kind of caregiver to meet your needs and discuss next steps to consider for care as PD advances. Part of the Wellness Wednesday webinar series.
Speaker: Joan Miravite, DNP, RN, registered nurse, Mount Sinai Beth Israel
Host: Parkinson's Foundation (PF)
Registration webpage:
https://secure3.convio.net/prkorg/site/Calendar?id=112991&view=RSVP& The webinar recording will be posted to the PF YouTube channel in the Wellness Wednesday playlist:
https://www.youtube.com/playlist?list=PLDGRDRM479GuzZjOzPl6Pm8MpwoGfIEpu ********************
Wednesday, July 17, 12pm
Treating Parkinson's with Gene Therapy Description: The speaker discusses the latest research in the role of AAV-GDNF therapy.
Speaker: Nisha Chhabia, MD, movement disorders specialist, and medical director of clinical development CNS gene therapy, Asklepios Biopharmaceutical, Inc.
Host: PMD Alliance
Registration webpage:
https://events.blackthorn.io/en/2EmH006/g/er1E4TcX7j/treating-parkinsons-with-gene-therapy-4a22UUgKaD/overview The webinar recording may be posted to the PMD Alliance YouTube channel:
https://www.youtube.com/channel/UCm_sAjRqhAaiutx2B9dOqng ********************
Thursday, July 18, 9am
Considering Deep Brain Stimulation (DBS): What to Know and Expect Description: People will share their personal stories and answer your questions on everything from how to think about having the procedure to surgery and life with the device. Part of the Third Thursday webinar series.
Multiple speakers: people who have underdone DBS and a movement disorder specialist
Host: Michael J. Fox Foundation (MJFF)
Registration webpage:
https://www.michaeljfox.org/webinar/considering-deep-brain-stimulation-what-know-and-expect The webinar recording is available on the MJFF YouTube channel:
https://www.youtube.com/watch?v=I75k8QJ7xI4 ********************
Friday, July 19, 10am
PSP and CBD Research Update Description: A movement disorder specialist will discuss past and current PSP and CBS research trials as well as update listeners about progress on tau biomarkers and imaging studies.
Speaker: Adam Boxer, MD, PhD, UCSF Memory and Aging Center
Hosts:
Stanford Medicine
Brain Support Network (BSN)
No registration required. At the time of the event, click this link to join:
bit.ly/july19-boxer Or join by phone:
Dial: +1 833 302 1536 Toll Free
Webinar ID: 987 5356 6173
Passcode: 071420
The webinar recording will be posted to the BSN YouTube channel:
https://www.youtube.com/channel/UCjLAn_J79-6OAT75pvkxA4w ********************
Tuesday, July 23, 12pm
Exercise is Medicine: Find Your Fitness Description: Learn how to find the right kind of exercise to manage your Parkinson's symptoms and slow progression. We will discuss how to choose the proper exercise format for you, search for programs locally and virtually, stay disciplined to continue exercising, see results, and use movement to create motivation and spark joy.
Speaker: Stacey Macaluso, Mission PD, Maple Shade, NJ
Host: PMD Alliance
Registration webpage:
https://events.blackthorn.io/en/2EmH006/g/cSZj452wMK/exercise-is-medicine-find-your-fitness-4a22UUbgMr/overview The webinar recording may be posted to the PMD Alliance YouTube channel:
https://www.youtube.com/channel/UCm_sAjRqhAaiutx2B9dOqng ********************
Miércoles, 24 de julio, 10am
Cambios de comportamiento y la enfermedad de Parkinson Descripción: Exploraremos la progresión de la enfermedad de Parkinson y su impacto en el estado de ánimo, la personalidad y el comportamiento. Descubriremos cómo los cambios asociados a esta enfermedad pueden influir en aspectos fundamentales de la vida diaria y discutiremos estrategias para abordar estos desafíos. Parte de la serie de seminarios web del Miércoles de Bienestar.
Anfitriona: Parkinson's Foundation (PF)
Inscripción:
https://secure3.convio.net/prkorg/site/Calendar?id=112472&view=RSVP& La grabación del seminario web se publicará en la lista de reproducción del Miércoles de Bienestar en el canal de YouTube de PF:
https://www.youtube.com/playlist?list=PLDGRDRM479Gv1XnsG3fyGQpXfzRPUAFWB ********************
Wednesday, July 24, 12pm
Medication Maximization in Parkinson Disease Description: The speaker will review the various medication options and how best to optimize a regimen for treating PD, the rationale of medical therapy in PD, and how to discuss modifications to your treatment with your doctor.
Speaker: Aliya I. Sarwar, MD, movement disorders specialist, Baylor College of Medicine, Houston, TX
Host: PMD Alliance
Registration webpage:
https://events.blackthorn.io/en/2EmH006/g/er1E4TcX7j/medication-maximization-in-parkinson-disease-4a22UUZdxl/overview The webinar recording may be posted to the PMD Alliance YouTube channel:
https://www.youtube.com/channel/UCm_sAjRqhAaiutx2B9dOqng *******************
Thursday, July 25, 12pm
PWR!Moves: Get Active for Brain Change Description: The speaker will lead exercises focused specifically on strengthening areas of concern for people with movement disorders, including posture, range of motion, and big movements. All skill levels are welcome, and no equipment is needed!
Speaker: Stacey Macaluso, Founder/head coach of Mission PD, Maple Shade, NJ
Host: PMD Alliance
Registration webpage:
https://events.blackthorn.io/en/2EmH006/g/N9b0S61cMa/pwrmoves-get-active-for-brain-change-4a22UUbgTJ/overview The webinar recording may be posted to the PMD Alliance YouTube channel:
https://www.youtube.com/channel/UCm_sAjRqhAaiutx2B9dOqng ********************
Friday, July 26, 10:30am
Caregivers Experience and Community Resources Audience: Caregivers (especially those in San Diego county)
Description: A speaker will discuss why self-care is important for caregivers. Information about resources available through the Southern Caregiver Resource Center will also be presented. Part of the Virtual Symposia webinar series.
Speakers:
Adriana Gonzalez, MSW, social worker, UC San Diego
Melissa Favela-Ayala, Southern Caregiver Resource Center (SCRC), Chula Vista, CA
Host: UC San Diego Parkinson and Other Movement Disorders Center
Registration webpage
https://ucsd.zoom.us/webinar/register/WN_8uZ7tojtRUizdm7Q0nREjw#/registration The webinar recording will be posted to the Community Symposium page of the UC San Diego Movement Disorders Center website:
https://neurosciences.ucsd.edu/centers-programs/movement-disorders/community/symposium.html ********************
Sunday, July 28, 10am
Tai Chi [for PD] Audience: Women with PD
Description: The speaker will lead Tai Chi exercises in a slow meditative way, guiding you to a deeper state of relaxation and wellbeing. The class can be done sitting or standing.
Speaker: Margaret Olmstead, senior teacher and Legacy Holder, Tai Chi Foundation
Host: Twitchy Woman
Registration webpage
https://us02web.zoom.us/meeting/register/tZIpce-uqjwuHNXd3F7JOCwi3m-1Fq-glziE#/registration The webinar recording will be posted to the Events page of the Twitchy Woman website:
https://twitchywoman.com/events/ ******************
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______________________________________________
StanfordPDInfo mailing list
This email list is the main way for the Stanford Parkinson's Community Outreach Program to communicate with those interested in learning more about PD. Our website is: med.stanford.edu/parkinsons
To reach the list moderator or to subscribe, contact Robin Riddle,
[email protected] . Another way to subscribe is to send email (from the address you want to subscribe) to
[email protected] . Then you will receive an email asking you to confirm.) To unsubscribe from this list, email (from the address you want to unsubscribe)
[email protected] . (Then you will receive an email asking you to confirm.)
