On Jan. 8 I will be tuning in to hear about the Many Forms of Carbidopa/Levodopa, including two new therapies recently approved by the FDA.
There are two webinars about speech. Learn about Speak Out speech therapy by the Parkinson's Voice Project on Jan. 14 and then the benefits of SpeechVive voice amplification on the 22nd.
There are also two webinars about maintaining independence. First, the Personal Care Series on Jan. 21 and 28 is a presentation by occupational therapists with tips and tricks for dressing, bathing, cooking, and more. And on Jan. 23 Practical Tips to Maintain Independence and Make Life Easier will share accommodations for travel, hobbying, exercise, and socialization.
Lastly, on Jan. 31 there's a talk on Psilocybin Therapy for Depression in PD.
We encourage you to register NOW for anything of interest. That way, if you aren't able to attend the live event, you will be alerted when the recording is available. (Note that not everything will be recorded.)
We at Stanford Parkinson's Community Outreach occasionally attend a webinar and share our notes. Notes from excellent PD-focused webinars are often posted to our blog at
https://parkinsonsblog.stanford.edu.
Denise
parkinsons.stanford.edu ********************************************************************************
Sundays, January 5, 12, 19, 26, 1-2:30pm
Close Contact for Couples [with PD] Description: This course teaches couples to collaborate on the movements of everyday life including better communication and new ways to trust and touch. Participants will explore the activities of daily living and experiment with different ways of assisting one another from bed to chair, chair to floor and down the street, making movement and collaboration easier and safer for both of you. This is a four-part series. (Plan to attend all sessions.)
Speaker: Judith Sachs
Host: Michigan Parkinson's
Registration webpage:
https://www.marylandparkinsonsupport.org/events/close_contact/ We have no information about recording this event.
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Thursday, January 8, 10am
The Many Forms of Carbidopa/Levodopa Description: The focus is the many forms of carbidopa/levodopa, including two new options recently approved by the FDA. Learn how doctors decide which formulation is best for you, when you should ask your doctor for a change in medication, what distinguishes the newest type of extended release capsules of carbidopa/levodopa from older versions, what subcutaneous levodopa is, and when the subcutaneous option is a good choice for you. Part of the Dr. Gilbert Hosts webinar series.
Moderator: Rebecca Gilbert, MD, PhD, APDA Chief Mission Officer
Speaker: Eleni Okeanis Vaou, MD, movement disorder specialist, UT Health San Antonio
Host: American Parkinson Disease Association (APDA)
Registration webpage:
https://www.apdaparkinson.org/events/dr-gilbert-hosts-carbidopa-levodopa/ The webinar recording will be posted to the APDA YouTube channel in the Dr. Gilbert Hosts playlist:
https://www.youtube.com/playlist?list=PLWc6Kqj5B4-KcMCUzYjoQAmhbIA1Chcv1 ********************
Wednesday, January 8, 10am
Understanding Deep Brain Stimulation and MRI Guided Focused Ultrasound (HIFU) Description: Learn about DBS as a treatment option for Parkinson's disease, essential tremor (ET), and dystonia, and HIFU as a treatment for ET.
Speaker: Katherine Baich-Colon, RN, BSN, Hartford neurosurgery nurse navigator
Host: Hartford Healthcare, Bridgeport, CT
Registration webpage:
https://hartfordhealthcare.org/health-wellness/classes-events/event-details?id=2656 This webinar is offered monthly and is not recorded.
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Wednesday, January 8, 12pm
Dance for Parkinson's Disease Description: The speaker will guide attendees through the research backed benefits of dance and teach a few dance moves.
Speaker: David Leventhal, founder, Dance for Parkinson's Disease
Host: Brian Grant Foundation (BGF)
Registration webpage:
https://us02web.zoom.us/webinar/register/WN_syOuGlsrQJuZYZsnc60P_g#/ The webinar recording will be posted to the BGF YouTube channel:
https://www.youtube.com/channel/UCFrXMx8ij2LdZtjOevZ1R2w ********************
Thursday, January 9, 9am
Rescue DBS and Maximizing your DBS Results Description: The speaker will discuss his approach to fine tuning and maximizing DBS results and what factors might lead someone to consider a second surgery.
Speaker: Casey Halpern, MD, neurosurgeon, Penn Medicine
Host: PMD Alliance
Registration webpage:
https://events.blackthorn.io/en/2EmH006/g/cSZj452wMK/rescue-dbs-and-maximizing-your-dbs-results-5a22UU17HwP/overview The webinar recording may be posted to the PMD Alliance YouTube channel:
https://www.youtube.com/channel/UCm_sAjRqhAaiutx2B9dOqng ********************
Saturday, January 11, 10:30am-12:30pm
Gene Therapies for Parkinson's Disease Description: The speakers will provide a brief background on gene therapy as well as its history and evolution for patients with PD. They will describe ongoing clinical trials, and what the future may hold for gene therapies for PD and other devastating brain diseases.
Speakers:
Nisha Chhabria, MD, Asklepios BioPharmaceutical (AskBio)
Amber Van Laar, MD, Asklepios BioPharmaceutical (AskBio)
Host: PD Active, Berkeley, CA
Registration webpage:
https://us06web.zoom.us/webinar/register/WN_OSeY-McNRQ2R1QhjD7FHIQ The webinar recording will be posted to the PD Active YouTube channel in the Webinars/Forums playlist:
https://www.youtube.com/playlist?list=PLxiZvsi1uIMGeEG87NUw2FHdXnLn-D4MU ********************
Monday, January 13, 11:30am
Preventing Parkinson's Disease Description: The speaker will share his main research takeaways from 2024 and the research results he will be looking for in 2025.
Speaker: Simon Stott, PhD, researcher, Cure Parkinson's
Host: No Silver Bullet 4 PD, United Kingdom
Registration webpage:
https://www.eventbrite.co.uk/e/pd-research-takeaways-from-2024-and-research-to-be-looking-for-in-2025-tickets-1120432687329 A webinar recording may be posted to the No Silver Bullet 4 PD YouTube channel:
https://www.youtube.com/channel/UCN2A0vGOY6j13Ed1rV64gPQ ********************
Tuesday, January 14, 4pm
Speak Out! Parkinson's Voice Project Description: Learn about Parkinson's Voice Project, which helps people with Parkinson's and related neurological disorders regain and retain their speech and swallowing. Patients are empowered to "speak with INTENT," transitioning speech from an automatic function to an intentional act.
Speaker: Hilary Byatt, MS, SLP, COO, Parkinson's Voice Project
Host: Young Onset Parkinson's Network (YOPN)
Registration webpage:
https://yopnetwork.org/event-5987198/Registration The webinar recording will be posted to the YOPN website:
https://yopnetwork.org/Speaker-Series ********************
Wednesday, January 15, 10am
Empowerment Through Movement [for PD] Description: The speaker will explore the ways that exercise can improve mobility, balance, and mood, and why it's essential for symptom management. Part of the Wellness Wednesday webinar series.
Speaker: Ryan Duncan, PT, physical therapist, Washington University, St. Louis
Hosts: Parkinson's Foundation (PF) and Bluegrass Parkinson's Alliance
Registration webpage:
https://secure3.convio.net/prkorg/site/Calendar?id=115211&view=RSVP& The webinar recording may be posted to the Wellness Wednesday playlist of the PF YouTube channel:
https://www.youtube.com/playlist?list=PLDGRDRM479GuzZjOzPl6Pm8MpwoGfIEpu ********************
Thursday, January 16, 9am
Managing the Hidden Symptoms: Mood and Motivation Changes in Parkinson's Description: An expert panel will discuss how mood changes can impact life with the disease, tips and treatments to manage them, and the latest research on these non-motor symptoms. Part of the Third Thursday webinar series.
Multiple speakers
Host: Michael J. Fox Foundation (MJFF)
Registration webpage:
https://www.michaeljfox.org/webinar/managing-hidden-symptoms-mood-and-motivation-changes-parkinsons The webinar recording is available on the MJFF YouTube channel:
https://www.youtube.com/watch?v=I75k8QJ7xI4 ********************
Monday, January 20, 1pm
Nutrition and Parkinson's Disease: Enhancing Well-Being through Diet Description: The speaker will delve into how food choices impact the body's detoxification system, a key process in the progression of PD, as well as the role of essential organs, such as the gut and liver, in maintaining health, and how disruptions in the gut microbiome may contribute to the development and progression of Parkinson's. She will also explore food choices that may promote a healthier gut environment and optimize liver function to help slow the progression of PD.
Speaker: Tracy Lister, RD, DCN, registered dietician, Seattle, WA
Host: Parkinson Society British Columbia (PSBC)
Registration webpage:
https://parkinson.bc.ca/event/nutrition-and-parkinsons-disease-enhancing-well-being-through-diet The webinar recording may be posted to the PSBC YouTube channel:
https://www.youtube.com/user/ParkinsonSocietyBC **********************
Tuesday, January 21 and 28, 10-11:30am
Personal Care Series for People with PD & Care Partners Description: An occupational therapist will give instruction and ideas regarding strategies and equipment to assist the person with PD with bathing, dressing, toileting, mobility, and cooking/feeding. This is a two-part series. (You must attend both sessions.)
Speaker: Mindy Laidlaw, OT, St. Charles Medical Center, Bend, OR
Host: Parkinson's Resources of Oregon (PRO)
Registration webpage (maximum 20 participants):
https://www.eventbrite.com/e/personal-care-series-virtual-for-people-with-pd-care-partners-tickets-1091501794249 To encourage participation, this webinar will not be recorded.
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Wednesday, January 22, 9am
Benefits of Speech Vive [for PD] Description: SpeechVive is a wearable speech device allowing you to speak louder and more clearly, every time you talk. The speaker will explain how to use this new device.
Speaker: Mary Spremulli, SLP
Host: Neuro Challenge, Sarasota, FL
Registration webpage:
https://us02web.zoom.us/webinar/register/WN_ZtrwoaVrRdSddj27dOBy9g The webinar recording will be posted to the Neuro Challenge YouTube channel:
https://www.youtube.com/neurochallenge ********************
Miércoles, 24 de diciembre, 10am
El Parkinson y los tratamientos: ¿Qué hay de nuevo? Descripción: Este programa explorará los últimos hallazgos en la investigación de la EP y tratamientos innovadores. Parte de la serie de seminarios web del Miércoles de Bienestar.
Presentadora: Veronica Bruno, MD, MPH, University of Calgary
Anfitriona: Parkinson's Foundation (PF)
Inscripción:
https://secure3.convio.net/prkorg/site/Calendar?id=115173&view=RSVP& La grabación del seminario web se publicará en la lista de reproducción del Miércoles de Bienestar en el canal de YouTube de PF:
https://www.youtube.com/playlist?list=PLDGRDRM479Gv1XnsG3fyGQpXfzRPUAFWB ********************
Thursday, January 23, 11am
Practical Tips to Maintain Independence and Make Life Easier (Part III) Description: The speaker will cover practical tips for leisure and recreation including exercise, car arrangement, travel, socialization, and adaptations for hobbies such as gardening and painting. Part three of the four-part Moving Forward webinar series.
Speaker: Mary Grace Lagasca, OT, occupational therapist
Host: Parkinson's Community Los Angeles (PCLA)
Registration website:
https://us02web.zoom.us/meeting/register/tZAvd-qvqzoqGtzE2nUiBo4dpffdTu9rUWs6 The webinar recording will be posted to the PCLA YouTube channel:
https://www.youtube.com/channel/UC-J9ub04IQxlSliKrTQ6nOQ/videos ********************
Wednesday, January 29, 8am
The Power of Food: Supporting Parkinson's Wellness Through Nutrition No description available
Speaker: Joyce Verdejo, RD, Sarasota Memorial Healthcare
Host: Neuro Challenge, Sarasota, FL
Registration webpage:
https://us02web.zoom.us/webinar/register/WN_K6UJUbd5TYeTOGuR1JO_Gg The webinar recording will be posted to the Neuro Challenge YouTube channel:
https://www.youtube.com/neurochallenge ********************
Wednesday, January 29, 9am
Advancing Parkinson's Trial Designs Description: A panel of experts will discuss how multi-arm, multi-stage (MAMS) clinical trial platforms can be used to accelerate the development and progression of potential therapies for Parkinson's, including the background and rationale for using MAMS platforms, learnings from MAMS platforms in Parkinson's and other conditions, and the ongoing initiatives for Parkinson's in the UK and abroad.
Moderator: Professor Tilo Kunath, PhD, University of Edinburgh
Hosts: University of Edinburgh and Journal of Parkinson's Disease
https://www.eventbrite.co.uk/e/webinar-advancing-parkinsons-trial-designs-registration-1106296676139 The webinar recording may be posted to the Cure Parkinson's YouTube channel.
https://www.youtube.com/@CureParkinsons ********************
Wednesday, January 29, 10am
A Deep Dive into Deep Brain Stimulation Description: The speaker will provide an in-depth look at what DBS involves, how it works, and who may benefit from the procedure. Participants will also hear from individuals who have undergone DBS who will share their experience of the preparation, procedure, and outcomes. Part of the Wellness Wednesday webinar series.
Speaker: Xenos Mason, MD, movement disorders specialist, USC Keck School of Medicine
Host: Parkinson's Foundation (PF)
Registration webpage:
https://secure3.convio.net/prkorg/site/Calendar?id=115212&view=RSVP& The webinar recording may be posted to the Wellness Wednesday playlist of the PF YouTube channel:
https://www.youtube.com/playlist?list=PLDGRDRM479GuzZjOzPl6Pm8MpwoGfIEpu ********************
Wednesday, January 29, 10am
Focused Ultrasound for PD & ET Description: Learn how focused ultrasound technology is used to treat Parkinson's Disease (PD) and essential tremor (ET) and hear testimony from a focused ultrasound patient with PD who will share his treatment experience.
Speakers:
Tim Meakem, Focused Ultrasound Foundation
Bobby Krause, person with YOPD, founder of Be Still Foundation
Host: PMD Alliance
Registration webpage:
https://events.blackthorn.io/en/2EmH006/g/cSZj452wMK/treating-with-sound-focused-ultrasound-for-pd-and-et-5a22UU15qVF/overview The webinar recording may be posted to the PMD Alliance YouTube channel:
https://www.youtube.com/channel/UCm_sAjRqhAaiutx2B9dOqng ********************
Friday, January 31, 8-11am
Learn More. Live Better. Parkinson's Symposium Description: Expert speakers will provide information to help you find the balance between a proactive approach to living with PD and wondering what lies ahead.
Speakers:
Carolina Parker, MD, UAB Heersink School of Medicine
Brandi Mason Ivey, MEd, Huntsville Hospital Parkinson's Care Clinic
Jay Arthur van Gerpen, MD, Neurology Consultants of Huntsville
Erin Edmundson, PT, Huntsville Hospital Parkinson's Care Clinic
Host: Parkinson's Foundation (PF)
Agenda:
https://www.parkinson.org/events/2025/Huntsville Registration webpage:
https://secure3.convio.net/prkorg/site/Calendar?id=113710&view=RSVP& We have no information about recording this event.
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Friday, January 31, 11am
Psilocybin Therapy for Depression in PD Description: The speaker will discuss how oral psilocybin can be used for depression and anxiety, and motor symptoms, in people with Parkinson's.
Speaker: Ellen Bradley, MD, UCSF Weill Institute For Neurosciences
Host: Parkinson's Community Los Angeles (PCLA)
Registration website:
https://us02web.zoom.us/meeting/register/tZUtceGtqTkiGdYLbdfIthEIfkLeKZLwrSbb#/ The webinar recording will be posted to the PCLA YouTube channel:
https://www.youtube.com/channel/UC-J9ub04IQxlSliKrTQ6nOQ/videos ********************
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