This information is provided to us by Stanford Parkinson's Community Outreach, a service of Stanford University.
Take a look at the interesting topics this month. There's everything from PD101 to living with parkinsonism, and everything in between.
We encourage you to register NOW for anything of interest. Attending in person allows you to ask questions of the speaker. If you are unable to attend the live event, you will be alerted if/when the recording is available.
About the list below, unless indicated, all webinars and virtual events are:
- Times listed as PT. (We are based in California, after all.)
- One hour in duration. (Usually, the speaker talks for 30-40 minutes and there’s a question-and-answer session for the remaining time.)
- If there is no speaker indicated, the speaker is unknown at the time of this email.
- For a general audience.
- Not focused on a single medication, branded treatment, or application. (Those are excluded.)
- Free.
We at Stanford Parkinson's Community Outreach occasionally attend a webinar and share our notes. Notes from excellent PD-focused webinars are often posted to our blog at https://parkinsonsblog.stanford.edu.
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Monday, August 3, 10am
Health, Legal and Financial Planning
No description available. The topic may not be specific to PD, though the host organization is PD-focused.
Speaker: Emily Hall, LCSW, Elder Law Attorney
Host: Philadelphia & Richmond VA PADRECC
At the meeting time, use the link to join: www.microsoft.com/en-us/microsoft-teams/join-a-meeting Meeting ID: 227 305 847 316 Passcode: TXmDJU Telephone: 872-701-0185 (ID: 666 709 920#)
Questions? Contact Jessica Kaplan, jessica.kaplan2@va.gov, phone 804-675-5931, Philadelphia & Richmond VA
This meeting is not recorded.
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Tuesday, August 4, 10am
Moving with Confidence – Balance Strategies in Everyday Life
Description: The speaker will share everyday strategies, helpful compensatory techniques, simple home adaptations, and adaptive equipment that can make common activities easier and safer. Part of the “Let’s Keep Moving with APDA” series.
Speaker: Teresa Baker, PT, physical therapist
Host: American Parkinson Disease Association (APDA)
Registration webpage: https://www.apdaparkinson.org/events/lets-keep-moving-with-apda-moving-with-confidence-balance-strategies-in-everyday-life/
The recording will be posted to the APDA YouTube channel in the Let’s Keep Moving with APDA playlist: https://www.youtube.com/playlist?list=PLWc6Kqj5B4-IebsCyBA_dlIbNcFAhN7OO
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Tuesday, August 4, 5pm
Take Control of Parkinson's: Your Personalized Plan to Move, Connect, and Thrive
Description: Participants will learn why exercise is medicine for Parkinson's, which types of exercise have the greatest impact, simple movement strategies they can begin this week, and how to create a sustainable plan for living well with PD.
Speaker: Emily Ramon, PT
Host: re+active, El Segundo, CA
Registration webpage: https://reactive.mykajabi.com/PDmasterclass
The recording may be posted to the re+active YouTube channel: https://www.youtube.com/@reactivetherapy
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Wednesday, August 5, 9am
Dementia in Parkinson’s/Lewy Body Dementia
Description: The speaker will discuss Lewy Body Dementia and Parkinson's disease dementia. Participants will learn how these conditions differ, explore common cognitive, movement, sleep, and behavioral symptoms, and better understand how they compare to Alzheimer's disease.
Speaker: Rachel T. Rose, OT, Lewy Body Dementia Association (LBDA)
Host: Parkinson Association of the Carolinas (PAC)
Registration webpage: https://us02web.zoom.us/meeting/register/wJsGOvZvRsKQAgACj0KyfQ#/
The recording may be posted to the PAC YouTube channel in the Virtual Support Groups playlist: https://www.youtube.com/playlist?list=PL8sgozIO6oFMg5CjGmvN02yBTDpu5YiDa
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Wednesday, August 5, 10am
Parkinson's Basics: What You Need to Know
Audience: Newly Diagnosed
Description: An introduction and basic overview of PD, including causes, common symptoms, available treatments and effective strategies for managing them. Learn practical daily living tips to empower you to take charge of your health and to navigate the challenges of living with PD. Part of the “Wellness Wednesday” series.
Speaker: Rozena Davis, APRN-CNP, Ohio State University Wexner Medical Center
Host: Parkinson’s Foundation (PF)
Registration webpage: https://secure.parkinson.org/site/Calendar?id=119169&view=RSVP&
The recording may be posted to the PF YouTube channel in the Wellness Wednesday playlist: www.youtube.com/playlist?list=PLDGRDRM479GuzZjOzPl6Pm8MpwoGfIEpu
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Wednesday, August 5, 10am-12pm
Understanding Deep Brain Stimulation and MRI Guided Focused Ultrasound (HIFU)
Description: Learn about DBS as a treatment option for Parkinson’s, essential tremor, and dystonia, and HIFU as a treatment for essential tremor.
Speaker: Katherine Baich-Colon, RN, BSN, Hartford neurosurgery nurse navigator
Host: Hartford Healthcare, Bridgeport, CT
Registration webpage: hartfordhealthcare.org/health-wellness/classes-events/event-details?id=2656
This webinar is offered monthly and is not recorded.
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Wednesday, August 5, 4pm
Understanding and Spotting Stress
Description: Learn why unrelieved and unproductive stress is bad for human health and how to take a break, unwind, and unplug.
Speaker: Marci Saltzman, LCSW
Host: Maryland Association for Parkinson Support (MAPS)
Registration webpage: https://www.marylandparkinsonsupport.org/events/
The webinar recording may be posted to the MAPS YouTube channel: https://www.youtube.com/@marylandassociationforpark3815
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Tuesday, August, 11, 12pm
Ask the Expert: The Lived Experience of PSP, CBD and MSA
Description: A panel of individuals living with these diseases and related conditions, who will share their personal experiences, including the emotional impact, the diagnostic journey, how they adapt to changes and ways they maintain their quality of life despite the challenges. Panelists will also discuss how family members, care partners and healthcare professionals can best provide support.
Speakers: Dean Odiorne, Person with MSA Kathleen Carter, Person with CBD Edward Marsh, Person with Undefined Parkinsonism
Host: CurePSP
Registration webpage: https://us02web.zoom.us/webinar/register/7217830058547/WN_ZvwZs2FbTaqm3uueo8ODxQ#/
The webinar recording will be posted to the CurePSP YouTube channel in the Ask the Expert playlist: https://www.youtube.com/playlist?list=PLID1PzLG_zrfrVyUy-E5C-rez-epeDVLE
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Tuesday, August 11, 4pm
Know Your Rights in the Workplace
Audience: Young-onset PD
Description: The speaker will explore common questions about what to share with your employer, your ADA protections, reasonable accommodations you can request – all tailored to the young onset Parkinson’s perspective.
Speaker: Kimberly Jacobsen, JD, Connecticut Commission on Human Rights and Opportunities
Host: Young Onset Parkinson’s Network (YOPN)
Registration webpage: https://events.blackthorn.io/en/2EmH006/g/escXzR5ekv/yopn-speaker-series-know-your-rights-in-the-workplace-5a22UU3fcxF/overview
The webinar recording may be posted to the YOPN YouTube channel: https://www.youtube.com/playlist?list=PL2HoMK6NmADicD6_85pEOmH2MVk0C5Zr_
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Wednesday, August 12, 10am
Lesser Known Symptoms of Parkinson’s Disease
Description: The speaker will explore often-overlooked symptoms of PD, like runny nose, pain, weight loss, and visual problems, how they can affect people with PD, and ways to combat them to improve how you’re feeling. Part of the “Dr. Gilbert Hosts” series.
Moderator: Rebecca Gilbert, MD, PhD, chief mission officer, American Parkinson Disease Association
Speaker: D. Campbell Dewey, Mayo Clinic, Jacksonville, FL
Host: American Parkinson Disease Association (APDA)
Registration webpage: https://app.webinar.net/3aJXBZOnvyP
The webinar recording will be posted to the APDA YouTube channel in the Dr. Gilbert Hosts playlist: www.youtube.com/playlist?list=PLWc6Kqj5B4-KcMCUzYjoQAmhbIA1Chcv1
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Wednesday, August 12, 10am
Traveling with Parkinson's
Description: The speaker will share practical tips to help make travel easier—from packing medications and navigating airports to adjusting to new time zones and finding accessible accommodations. Learn how to travel with greater confidence, reduce stress, and focus on enjoying the experience. Part of the “Wellness Wednesday” series.
Speaker: Roxanne Julius, PT, M Health Fairview
Host: Parkinson’s Foundation (PF)
Registration webpage: https://secure.parkinson.org/site/Calendar?id=119449&view=RSVP&
The recording may be posted to the PF YouTube channel in the Wellness Wednesday playlist: www.youtube.com/playlist?list=PLDGRDRM479GuzZjOzPl6Pm8MpwoGfIEpu
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Wednesday, August 12, 12pm
Parkinson's and the Gut-Brain Connection
Description: The speaker will discuss how the digestive system and brain communicate, and why this relationship may play an important role in PD.
Speaker: Bianca Palushaj, MD, movement disorder specialist, Stanford
Host: Brian Grant Foundation (BGF)
Registration webpage: https://us02web.zoom.us/webinar/register/WN_pvWcS4j-Q4COzVrhsQLONw#
The recording may be posted to the BGF YouTube channel: https://www.youtube.com/channel/UCFrXMx8ij2LdZtjOevZ1R2w/videos
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Tuesday, August 13, 11am
Parkinson’s and Exercise: Your Questions Answered
Description: The speaker will discuss current exercise recommendations for people with Parkinson’s, what to do if you’re having a hard time meeting those recommendations, whether there is a “best” way to exercise, whether exercise is neuroprotective and what that means, and how to measure your progress in both the short and long term. Part of the “Live Well Today” series.
Speakers: Jay Alberts, PhD, Cleveland Clinic Daniel Corcos, PhD, Northwestern University
Host: Davis Phinney Foundation (DPF)
Registration webpage: https://davisphinneyfoundation.org/events/parkinsons-and-exercise-your-questions-answered-with-jay-alberts-and-daniel-corcos/
The recording will be posted to the DPF website: https://davisphinneyfoundation.org/events/live-well-today-webinar-series/#past
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Monday, August 17, 4-5:30pm
DBS Conversations Summer Session: Speech & Swallowing
Audience: Those interested in deep brain stimulation (DBS)
Description: The speaker will explore how speech and swallowing assessments impact DBS decisions, surgery prep, and outcomes.
Speaker: Brooke Shea, MS, SLP, Oregon Health and Science University (OHSU)
Host: Parkinson Resources of Oregon (PRO)
Registration webpage: https://www.eventbrite.com/e/dbs-conversations-summer-session-speech-swallowing-virtual-registration-1989623243681
The webinar recording may be posted to the PRO YouTube channel: https://www.youtube.com/user/ParkinsonsResources
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Wednesday, August 18, 4pm
Parkinson’s and the Environment - So, What’s the Story?
Description: Learn why unrelieved and unproductive stress is bad for human health and how to take a break, unwind, and unplug.
Speaker: Lauryn Currens, MD, MedStar Health, Baltimore, MD
Host: Maryland Association for Parkinson Support (MAPS)
Registration webpage: https://www.marylandparkinsonsupport.org/events/conversations-with-a-doc/
The webinar recording will be posted to the MAPS YouTube channel in the Conversations with a Doc playlist: https://www.youtube.com/playlist?list=PLH5lVqkf26bRezue7Hw9BdE3Izp9zjNew
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Wednesday, August 19, 9am
Changes in Relationships Dynamics
Description: The speaker will explore how relationships can change as a result of Parkinson's disease and offer practical strategies for navigating those changes together. Part of the “Wellness Wednesday” series.
Speaker: Sarah Cook, PhD, Duke University
Host: Parkinson Association of the Carolinas (PAC)
Registration webpage: https://us02web.zoom.us/meeting/register/h5xpS-H4QQW_ZeOZropVHw#/
The recording may be posted to the PAC YouTube channel in the Wellness Wednesday playlist: https://www.youtube.com/playlist?list=PL8sgozIO6oFNGjWgirj7XnpERPUCtdF2N
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Wednesday, August 19, 10am
Psychosis & Hallucinations
Description: Speakers will discuss what psychosis and hallucination experiences mean, why they happen, how to recognize them, and how to respond with compassion and calm. Attendee questions will guide the discussion. Experts share practical strategies to support safety, understanding, and emotional well-being. Part of the “Coffee & Conversations” series.
Speakers: Sneha Mantri, MD, MS, Duke University Ruth Schneider, MD, University of Rochester Medical
Host: Parkinson’s Foundation (PF)
Registration webpage: https://secure.parkinson.org/site/Calendar?id=119229&view=RSVP&
The recording may be posted to the PF YouTube channel in the Coffee and Conversations playlist: https://www.youtube.com/playlist?list=PLDGRDRM479GsxJEI2r1FAKCttOeKwC6Fm
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Thursday, August 20, 9am
Can Parkinson’s Disease Be Inherited?
Description: Learn more about how genetics can influence Parkinson’s risk and help guide the development of better treatments for everyone living with the disease. Part of the “Third Thursday” series.
Multiple speakers
Host: Michael J. Fox Foundation (MJFF)
Registration webpage: https://www.michaeljfox.org/webinar/can-parkinsons-disease-be-inherited
The webinar recording will be posted to the MJFF YouTube channel: www.youtube.com/channel/UCEwLnD6-KxGvKqnohdQ8lCw
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