Denise Dagan www.stanford.edu From:[email protected] To:[email protected],stanfordpdinfo,pdsupportgps-norcal Mon, Oct 28 at 2:36 PM The list below is of November 2024 Parkinson's-focused webinars and virtual events with speakers.
Our list is coming out a bit early this month because the "Power Up Your Voice" webinar series by APDA Northwest begins on Wednesday, Oct. 30. Attendees will learn what happens with the voice when someone has PD, the evidence-based therapies that can compensate, how to motivate yourself to practice the exercises that keep your voice strong, and more. This series of four classes builds one upon the other, so you're asked to attend all four. We encourage you to register NOW for anything of interest. That way, if you aren't able to attend the live event, you will be alerted when the recording is available. About the list below, unless indicated, all webinars and virtual events are:
Times listed as PT. (We are based in California, after all.)
One-hour in duration. (Usually, the speaker talks for 30-40 minutes and there's a question-and-answer session for the remaining time.)
If there is no speaker indicated, the speaker is unknown at the time of this email.
For a general audience.
Not focused on a single medication or single, branded treatment. (Those are excluded.)
Free.
We at Stanford Parkinson's Community Outreach occasionally attend a webinar and share our notes. Notes from excellent PD-focused webinars are often posted to our blog, parkinsonsblog.stanford.edu.Wednesday, October 30, November 6, 13, and 20, 10:30am Power Up Your Voice Note: This is not meant to be a drop-in program as information in each class will build upon the other. Please attend all four sessions. Description: In this four-part series, a speech-language pathologist will discuss: understanding why voice and volume are perfectly clear sometimes and other times not (week 1), evidence-based voice programs LSVT and SPEAK OUT! (week 2), creating external motivation to exercise your voice (week 3), and extra tools that help with voice volume (week 4). Part of the "Beyond Medication Wellness Series." Speaker: Jessica Aubin, SLP, Aubin Aphasia Speech & Language Center, Bainbridge Island, WA Host: APDA Northwest (APDA NW) Registration website:
Saturday, November 2, 10am-12pm Discovering Adaptability & Resilience [Caring for Someone with PD] Audience: PD Caregivers Description: Discover how adaptability and resilience can help manage life with Parkinson's disease. Learn effective strategies for handling the disease's progression and managing fluctuating symptoms with confidence. Gain practical tools to respond resiliently to setbacks and emotional challenges and understand the importance of acknowledging emotions and fostering emotional well-being. A Care Partner Summit. Speaker: Bradley McDaniels, PhD, University of North Texas Host: Parkinson's Foundation (PF) Registration webpage: https://secure3.convio.net/prkorg/site/Calendar?id=114389&view=RSVP&
We have no information about recording this event. ******************** Monday, November 4, 10am Long Term Care Planning [for PD] No Description Available Speaker: Emily Hall, LCSW Host: Philadelphia & Richmond Veterans Administration (VA) Parkinson's Disease Research, Education and Clinical Center (PADRECC) At the meeting time, use this link to join: Meeting ID: 227 305 847 316 Passcode: TXmDJU Telephone: 872-701-0185 (ID: 666 709 920#) Questions? Contact Jessica Kaplan, [email protected], 804-675-5931, Philadelphia & Richmond VA, with questions. We have no information about the recording of this event. ******************** Monday, November 4, 12pm Fireside Chat with Dr. Soania Mathur Description: The speaker will share how she balances her professional life, advocacy work, and podcasting, all while managing Parkinson's. Gain insights into living well with a chronic disease and hear directly from someone who navigates this journey with grace and resilience. Speaker: Soania Mathur, MD, retired family physician and person with PD Host: Parkinson Society British Columbia (PSBC) Registration webpage: https://www.parkinson.bc.ca/events/education-events/fireside-chat-with-dr-soania-mathur/ The webinar recording may be posted to the PSBC YouTube channel: https://www.youtube.com/user/ParkinsonSocietyBC ********************** Monday, November 4, 2:30pm A Photographer's Journey into Parkinson's Description: The speaker will share her new series of large-scale, color images titled, "Tremor." This collection of images explores the connections between the artist's Parkinson's Disease (diagnosed in 2019) and the movements and changeability of nature. To make such captivating photographs, a slow shutter is used and the artist allows her tremor to guide the camera. Speaker: Kristin V. Rehder, MA, documentary photographer and writer Host: PD-Connect, Corte Madera, CA Registration webpage: https://us02web.zoom.us/meeting/register/tZUrdemuqzoiGt2zYdIm9iwbLdpRSkYYtpt2#/ The webinar recording will be posted to the PD-Connect YouTube channel: https://www.youtube.com/channel/UCQuo2tv9QdgwIad29s5JSow ******************** Wednesday, November 6, 9am How to Manage Parkinson's Symptoms: A Focus on Sleep Disturbance, Fatigue, and Constipation No description available Speaker: Lindsey Smith, PharmD, Sarasota Memorial Health Care System Host: Neuro Challenge, Sarasota, FL Registration webpage: https://us02web.zoom.us/webinar/register/WN_zfq1jbC_SjuRS4SMfuJHeg#/
The webinar recording will be posted to the Neuro Challenge YouTube channel: https://www.youtube.com/neurochallenge ******************** Wednesday, November 6, 10am New to Parkinson's [Caregiving] Audience: Newly Diagnosed PD Caregivers Description: Receiving a PD diagnosis can feel overwhelming. Explore the unique ways each person experiences their diagnosis. Discuss how relationship dynamics may change and receive guidance on maintaining a strong sense of self throughout the journey. A Care Partner Summit. Speaker: Laura M. Clabo, LAPSW, University of Tennessee Medical Center Host: Parkinson's Foundation (PF) Registration webpage: https://secure3.convio.net/prkorg/site/Calendar?id=113573&view=RSVP& We have no information about recording this event. ******************** Wednesday, November 6, 10am Understanding Deep Brain Stimulation and MRI Guided Focused Ultrasound (HIFU) Description: Learn about DBS as a treatment option for PD, essential tremor and dystonia, and HIFU as a treatment for essential tremor. Speaker: Katherine Baich-Colon, RN, BSN, Hartford neurosurgery nurse navigator Host: Hartford Healthcare, Bridgeport, CT Registration webpage: https://hartfordhealthcare.org/health-wellness/classes-events/conifer-registration This webinar is offered monthly and is not recorded. ******************** Wednesday, November 6, 11am Supplements for Parkinson's: Goose Chase or Game Changer? Description: Understand common supplements used for Parkinson's symptoms and the evidence behind them. Part of the NeuroLife webinar series. Speaker: Laurie Mischley, ND, PhD, MPH, Bastyr University Host: PMD Alliance Registration webpage: https://events.blackthorn.io/en/2EmH006/g/cSZj452wMK/supplements-for-parkinsons-goose-chase-or-game-changer-4a22UUwpa1 The webinar recording may be posted to the PMD Alliance YouTube channel: https://www.youtube.com/channel/UCm_sAjRqhAaiutx2B9dOqng ******************** Thursday, November 7, 11am Discussion of DBS Medical Devices Attributes Description: Representatives from Abbott, Boston Scientific, and Medtronic will discuss the attributes of their medical devices used for Deep Brain Stimulation (DBS) to help those interested in DBS determine which device is most suitable for their individual circumstances.
Speakers: Matt Mian, MD (Abbott) Brad Antkiewicz (Abbott) Merek Gourley (Boston Scientific) Meg Lambert (Medtronic)
Host: Parkinson Association of the Rockies (PAR) Registration webpage: https://docs.google.com/forms/d/e/1FAIpQLScXNB7lUHGbNKL8SU5XRvA1AySVVbN3IhQ8OklJF9fi-WQSZA/viewform The webinar recording will be posted to the PAR YouTube channel: https://www.youtube.com/user/ParkinsonRockies ******************** Tuesday, November 8, 12pm Living Well with Advancing Parkinson's: Tips and Tools for Care Partners and People with Parkinson's Description: The speakers will share practical advice for care partners and people with PD about navigating advancing and advanced Parkinson's, including tips and tools to help manage cognitive decline, apathy and fatigue, difficulties with sleep, speech and swallowing disruption, and urinary and digestive issues. Moderator: Polly Dawkins, Davis Phinney Foundation Executive Director Speaker: Jori Fleisher, MD, Rush University Host: Davis Phinney Foundation (DPF) Registration webpage: https://secure2.convio.net/dpf/site/SSurvey?ACTION_REQUIRED=URI_ACTION_USER_REQUESTS&SURVEY_ID=4760 The webinar recording may be posted to the DPF YouTube channel: https://www.youtube.com/@davisphinneyfdn/featured ******************** Saturday, November 9, 10:30am-12:30pm Women and Parkinson's Disease: Addressing Differences and Unmet Needs Description: The speakers will provide an overview of how women differ from men when it comes to risk factors for PD, motor and non-motor symptoms of PD, response to treatments, and social impact. They will also discuss the unmet needs of women and ongoing and future research that is aimed to better understand gender differences in PD and tailor treatment strategies to improve care, outcomes, and quality of life in women. Speakers: Nijee Luthra, MD, PhD, movement disorders specialist, UCSF Tamara Stiep, MD, movement disorders specialist, UCSF Host: PD Active, Berkeley, CA Registration webpage: https://us06web.zoom.us/webinar/register/WN_hMMWtTQyS32vgOVsGGXBAg The webinar recording will be posted to the PD Active YouTube channel in the Webinars/Forums playlist: https://www.youtube.com/playlist?list=PLxiZvsi1uIMGeEG87NUw2FHdXnLn-D4MU ******************** Sunday, November 10, 10am Robert Cochrane: Acceptance, Improv for PD and Day One Audience: Women with PD Description: The author of "Acceptance: A Hero's Journey through Parkinson's and a PhD" will talk about his new book, Improv for PD, and Day One writing program. Speaker: Robert Cochrane, PhD, author Host: Twitchy Woman Registration webpage: https://us02web.zoom.us/meeting/register/tZ0lfuyhpjgiGdPzKeH4S4JKuqr8NhRae0c3# The webinar recording will be posted to the Events page of the Twitchy Woman website: https://twitchywoman.com/events/ ******************** Monday, November 11, 11:30am Rebranding Parkinson's - a New Patient-centered, Evidence-based Approach Description: Despite 200+ years of effort, we do not have a system to predict, prevent, halt, or reverse Parkinson's. The speaker will explore the notion that the problem lies in the lens through which we've been viewing it, the approaches we've been taking, and the assumptions we've been making. She suggests a revised patient-centered, evidence-based, pragmatic paradigm that includes education, symptom tracking, goal-setting, and counseling regarding diet, daily physical activity, social health, and strategies to encourage financial stability. Speaker: Laurie Mischley, ND, PhD, MPH, Bastyr University Host: No Silver Bullet 4 PD, United Kingdom Registration webpage: https://www.eventbrite.co.uk/e/rebranding-parkinsons-live-webinar-by-dr-laurie-mischley-nd-phd-mph-tickets-1052311842047? A webinar recording may be posted to the No Silver Bullet 4 PD YouTube channel: https://www.youtube.com/channel/UCN2A0vGOY6j13Ed1rV64gPQ ******************** Tuesday, November 12, 4pm Depression and Anxiety with Parkinson's No descriptions available. Part of the Conversations with a Doc quarterly speaker series. Speakers: Gwenn S. Smith, PhD, Johns Hopkins University Rebecca Rye, CRNP-PMH, Johns Hopkins Hospital Host: Maryland Association for Parkinson Support (MAPS) At the meeting time, use this link to join A webinar recording will be posted to the MAPS YouTube channel: https://www.youtube.com/@marylandassociationforpark3815 ******************** Tuesday, November 12, 4pm Don't Wait Until It's Too Late - Exercise is the One Thing That Can Give You Back Control Audience: Young Onset PD (YOPD) Description: The speaker will share the specific ways to exercise in order to reduce PD symptoms and potentially slow the progression of the disease. She will remind listeners that if you don't start exercising as soon as you are diagnosed, you miss a window of opportunity to potentially pause PD's progression and that PD accelerates quickly with inactivity. Speaker: Kristine Meldrum, exercise professional, author Host: Young Onset Parkinson's Network (YOPN) Registration webpage: https://yopnetwork.org/event-5881222/ The webinar recording will be posted to the YOPN website: https://yopnetwork.org/Speaker-Series ******************** Wednesday, November 13, 8am VA Aid & Attendance Benefits Not specific to PD Description: The speaker will present info about Aid and Attendance benefits, compensation and pension. Speaker: Aretha Gipson, Outreach Veterans Service Officer Host: Neuro Challenge, Sarasota, FL Registration webpage: https://us02web.zoom.us/webinar/register/WN_f9EXHkDRS3S_P8V3t4aJ7Q#/ The webinar recording will be posted to the Neuro Challenge YouTube channel: https://www.youtube.com/neurochallenge ******************** Wednesday, November 13, 10am What's on Your Mind? Thinking & Memory Changes Description: This webinar will review the cognitive and memory changes in Parkinson's, like slowness in thinking, decreased attention span and difficulty finding words. The speaker will share practical strategies to help with daily activities. Part of the Wellness Wednesday webinar series. Speaker: Greg Pontone, MD, University of Florida Host: Parkinson's Foundation (PF) Registration webpage: https://secure3.convio.net/prkorg/site/Calendar?id=113791&view=RSVP& The webinar recording may be posted to the Wellness Wednesday playlist of the PF YouTube channel: https://www.youtube.com/playlist?list=PLDGRDRM479GuzZjOzPl6Pm8MpwoGfIEpu ******************** Wednesday, November 13, 11am Are Parkinson's and DLB Two Sides of the Same Disease? Description: The speaker will discuss why it might make sense to combine Parkinson's Disease and Dementia with Lewy Bodies into a single disorder. Part of the NeuroLife webinar series. Speaker: Daniel Weintraub, MD, psychiatrist, University of Pennsylvania Host: PMD Alliance Registration webpage: https://events.blackthorn.io/en/2EmH006/g/cSZj452wMK/are-parkinsons-and-dlb-two-sides-of-the-same-disease-5a22UU1169F/overview The webinar recording may be posted to the PMD Alliance YouTube channel: https://www.youtube.com/channel/UCm_sAjRqhAaiutx2B9dOqng ******************** Wednesday, November 13, 12pm Social Prescribing for People Living with Parkinson's Disease Description: The speaker will discuss the science behind how vital social interaction is for improving mood, reducing feelings of loneliness, and enhancing the overall quality of life for individuals with PD. Speaker: Indu Subramanian, MD, UCLA Host: Brian Grant Foundation (BGF) Registration webpage: https://us02web.zoom.us/webinar/register/WN_axbDL9GTQVC9h2-bKL2U4w#/ The webinar recording will be posted to the BGF YouTube channel: https://www.youtube.com/channel/UCFrXMx8ij2LdZtjOevZ1R2w ******************** Thursday, November 14, 11am Practical Tips to Maintain Independence and Make Life Easier (Part II) Description: The speaker will share practical tips to maintain independence and make life easier. Part two of the four-part Moving Forward webinar series. Speaker: Mary Grace Lagasca, OT, occupational therapist Host: Parkinson's Community Los Angeles (PCLA) Registration website: https://us02web.zoom.us/meeting/register/tZAudeitqDwsH9InKB4nVDSF3OO_TrXgL0t4#/ The webinar recording will be posted to the PCLA YouTube channel: https://www.youtube.com/channel/UC-J9ub04IQxlSliKrTQ6nOQ/videos ******************** Wednesday, November 14, 12pm Thriving with Parkinson Disease Description: The speaker will review what to expect and how to advocate for your best treatment options. Part of the NeuroLife webinar series. Speaker: Sandeep Thakkar, DO, neurologist, Hoag Medical Group, Irvine, CA Host: PMD Alliance Registration webpage: https://events.blackthorn.io/en/2EmH006/g/2Mg4agHF8W/thriving-with-parkinson-disease-5a22UU114oz/overview The webinar recording may be posted to the PMD Alliance YouTube channel: https://www.youtube.com/channel/UCm_sAjRqhAaiutx2B9dOqng ******************** Friday, November 15, 1pm Taking Care of Yourself – Self-Compassion for Caregivers Audience: Caregivers Not specific to PD. Some information may be specific to British Columbia Description: The speaker will explore the importance of support in your caregiver role, reflect on your current level of self-care, and discuss the practice of self-compassion as well as examine how to build and utilize support networks and understand the dimensions of resilience. Also, Family Caregivers of British Columbia will share valuable resources. Part one of a three-part Caregiver Webinar Series. Speakers: Ross Dunne, MD, Greater Manchester Dementia Research Centre, Manchester, England Representatives from Family Caregivers of British Columbia Host: Parkinson Society British Columbia (PSBC) Registration webpage: https://parkinson.bc.ca/event/caregiverwebinar1-2024 The webinar recording may be posted to the PSBC YouTube channel: https://www.youtube.com/user/ParkinsonSocietyBC ********************** Monday, November 18, 11am Bas Bloem, The Parkinson Pandemic, A Call to Action! Description: The speaker will address the Parkinson Pandemic as well as numerous new research studies that offer strategies for an optimistic road forward. Speaker: Bas Bloem, MD, PhD, Radboud University Medical Centre, Nijmegen, The Netherlands Host: PD-Connect, Corte Madera, CA Registration webpage: https://us02web.zoom.us/meeting/register/tZMrdO6przguG9VYLpcweFJDmBhsxDMyoaVT#/ The webinar recording will be posted to the PD-Connect YouTube channel: https://www.youtube.com/channel/UCQuo2tv9QdgwIad29s5JSow ******************** Monday, November 18, 4pm Navigating Caregiving as a Couple: Real-Life Experiences and Strategies Audience: Caregivers Not specific to PD Description: This discussion will explore how couples manage the complexities of caregiving while maintaining their relationships and individual well-being. Attendees will have the opportunity to hear firsthand about strategies for navigating dual roles and can ask questions about balancing caregiving responsibilities with a shared life. Part two of a three-part Caregiver Webinar Series. Facilitator: Corrina Masson, MSW, Parkinson Society British Columbia Speakers: Stan Shabason Ahava Shira Michelle Heath Host: Parkinson Society British Columbia (PSBC) Registration webpage: https://parkinson.bc.ca/event/caregiverwebinar2-2024 The webinar recording may be posted to the PSBC YouTube channel: https://www.youtube.com/user/ParkinsonSocietyBC ********************** Wednesday, November 20, 9am A Neurological Approach for Parkinson's Disease Description: The speaker will discuss how acupuncture techniques can help symptoms of Parkinson's. Speaker: John Gorsuch, DACM, Venice Acupuncture & Functional Neurology, Venice, FL Host: Neuro Challenge, Sarasota, FL Registration webpage: https://us02web.zoom.us/webinar/register/WN_YkYISAL2T8aTXad2JJQdvA#/ The webinar recording will be posted to the Neuro Challenge YouTube channel: https://www.youtube.com/neurochallenge ******************** Wednesday, November 20, 10am The Essentials Toolbox [When Caring for Someone with PD] Audience: PD Caregivers Description: Panelists will share what they have learned and offer effective tips and tools that support everyday PD caregiving challenges. The care partner's toolbox may include tips for self-care, strategies for building support networks and enhancing communication skills. Share the essential tools and resources that have helped you. A Care Partner Summit. Speaker: Ece Bayram, MD, PhD, University of Colorado Anschutz Host: Parkinson's Foundation (PF) Registration webpage: https://secure3.convio.net/prkorg/site/Calendar?id=113574&view=RSVP& We have no information about recording this event. ******************* Thursday, November 21, 9am Year of Momentum: What Parkinson's Research Accomplished in 2024 Description: MJFF scientists, staff and other experts review this transformational time in Parkinson's research, discussing the latest in the search for better treatments, advances in our understanding of the disease and more. Part of the Third Thursday webinar series. Multiple speakers Host: Michael J. Fox Foundation (MJFF) Registration webpage: https://www.michaeljfox.org/webinar/year-momentum-what-parkinsons-research-accomplished-2024 The webinar recording is available on the MJFF YouTube channel: https://www.youtube.com/watch?v=I75k8QJ7xI4 ******************** Thursday, November 21, 11am Ten Things You Need to Know About Hospice Audience: Caregivers Not Specific to PD Description: The speaker will discuss the essentials of hospice care to empower family caregivers to make informed decisions and advocate for the best care possible, while receiving essential resources and support to navigate end-of-life care. Learn basic hospice philosophy, when to consider hospice care, the core members of the interdisciplinary team and their roles, who can make a referral to hospice, and who can start and stop hospice care. Speaker: Helen Bauer, RN, hospice nurse Host: Family Caregiver Alliance (FCA), San Francisco, CA Registration webpage: https://us06web.zoom.us/webinar/register/WN_ylojSuQsQESjzmHq5hP5zw#/ The webinar recording may be posted to the FCA YouTube channel: https://www.youtube.com/@CAREGIVERdotORG ******************** Tuesday, November 26, 2pm Addressing Caregiver Needs: Burden, Burnout, and Support for Wellbeing Audience: Caregivers Not specific to PD Description: The speaker will focus on the caregiver's own mental and emotional health. Explore the signs of burnout, the impact of caregiving on personal identity and relationships, and effective strategies for managing grief and emotional stress. Gain practical tools and support to maintain well-being and resilience throughout the caregiving journey. Part three of a three-part Caregiver Webinar Series.
Speaker: Tricia Wallace, counselor, Parkinson Society British Columbia Host: Parkinson Society British Columbia (PSBC) Registration webpage: https://parkinson.bc.ca/event/caregiverwebinar3-2024 The webinar recording may be posted to the PSBC YouTube channel: https://www.youtube.com/user/ParkinsonSocietyBC ******************** Miércoles, 27 de noviembre, 10am Una conversación sobre herramientas prácticas Audiencia: cuidadoras No específico de la EP Descripción: La caja de herramientas para aliados en el cuidado incluirá estrategias prácticas, recursos y mecanismos de apoyo. Nuestros panelistas profundizarán en consejos y herramientas eficaces diseñados para simplificar los desafíos cotidianos. Los temas pueden incluir el autocuidado, la creación de redes de apoyo, mejorar las habilidades de comunicación, brindar asistencia práctica y estrategias para la planificación anticipada. Cumbre para Cuidadores. Moderadora: Josephine De Lira, trabajadora social clínica certificada, Northwestern Medicine Panelistas: Oda Garcia, embajadora de la Parkinson's Foundation, hija adulta cuidadora Carla Velastegui, miembro del People with Parkinson's Advisory Council, hija adulta cuidadora Anfitriona: Parkinson's Foundation (PF) Inscripción: https://secure3.convio.net/prkorg/site/Calendar?id=114409&view=RSVP& No tenemos información sobre la grabación de este evento. ******************** _____________________________________________ PDcaregivers mailing list
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