The list below is of September 2024 Parkinson's-focused webinars and virtual events with speakers. We at Stanford Parkinson's Community Outreach occasionally attend a webinar and share our notes. Notes from excellent PD-focused webinars are often posted to
our blog.
Denise
http://med.stanford.edu/parkinsons.html There is a link to the slide presentation "PD Hacks" from our last meeting,
click here.
List of webinars and virtual events with speakers: Tuesday, September 3, 8am What is the Key Pathology to Parkinson's? Description: A researcher shares his findings on Parkinson's pathology. Part of the WPC Research Spotlight 2024 webinar series.
Speaker: Jeffrey Kordower, PhD, ASU-Banner Neurodegenerative Disease Research Center
Host: World Parkinson Coalition (WPC)
Rgistration webpage:
https://web.cvent.com/survey/c052427f-e1aa-40e1-ad2e-e022594d7ef1/welcome A webinar recording will be posted to the WPC website:
https://www.worldpdcoalition.org/page/WPCResearchSpotlight2024 ********************
Wednesday, September 4, 9am
Innovations in Gene Therapies for Parkinson's Description: A panel of experts will discuss the latest research news regarding the development of gene therapies, with emphasis on neurotrophic or nerve growth factors for Parkinson's, the challenges associated with these therapies, and what ways researchers are currently exploring to overcome this.
Moderator: Professor Tilo Kunath, PhD, University of Edinburgh
Panelists:
Aideen Sullivan, BSc, PhD, University College Cork, Ireland
Melanie Brandabur, MD, VP of Clinical Development, Capsida Biotherapeutics
Tom Phipps, person with Parkinson's and research advocate
Hosts:
University of Edinburgh
Journal of Parkinson's Disease
Registration webpage:
https://eventbrite.co.uk/e/webinar-innovations-in-gene-therapies-for-parkinsons-registration-978005850827 The webinar recording may be posted to the Cure Parkinson's YouTube channel.
https://www.youtube.com/@CureParkinsons ********************
Wednesday, September 4, 10am
Exploring Music Therapy for Parkinson's Description: Explore three music therapy programs – Drums Alive!, Sentimental Journey Therapeutic Choir, and Harmonic Basics. Experience each firsthand and learn the unique benefits they offer for individuals living with PD. Part of the Wellness Wednesday webinar series.
Speaker: Laura Soldato, MEd, Bluegrass Parkinson's Alliance
Hosts:
Parkinson's Foundation (PF)
Bluegrass Parkinson's Alliance
Registration webpage:
https://secure3.convio.net/prkorg/site/Calendar?id=112469&view=RSVP& The webinar recording may be posted to the Wellness Wednesday playlist of the PF YouTube channel:
https://www.youtube.com/playlist?list=PLDGRDRM479GuzZjOzPl6Pm8MpwoGfIEpu ********************
Wednesday, September 4, 10am
Understanding Deep Brain Stimulation and MRI Guided Focused Ultrasound (HIFU) Description: Learn about DBS as a treatment option for Parkinson's disease, essential tremor and dystonia and HIFU as a treatment for essential tremor.
Speaker: Katherine Baich-Colon, RN, BSN, Hartford neurosurgery nurse navigator
Host: Hartford Healthcare, Bridgeport, CT
Registration webpage:
https://hartfordhealthcare.org/health-wellness/classes-events/event-details?id=2656 This webinar is offered monthly and is not recorded.
********************
Thursday, September 5, 8am
Deep Brain Stimulation - the Latest Advancements, 2024 Edition Description: The speakers will discuss the current state of Deep Brain Stimulation (DBS) as a Parkinson's treatment, including adaptive DBS, developments in DBS programming, safety considerations related to DBS, and more.
Speakers:
Soania Mathur, MD (ret), Parkinson's advocate, person with YOPD
Joohi Jimenez-Shahed, MD, Mount Sinai Health
Host: Davis Phinney Foundation (DPF)
Registration webpage:
https://davisphinneyfoundation.org/event/live-webinar-deep-brain-stimulation-the-latest-advancements-2024-edition/ The webinar recording may be posted to the DPF YouTube channel:
https://www.youtube.com/@davisphinneyfdn/featured ********************
Thursday, September 5, 9am
Insights into Genetics, Management, and Personal Impact Description: The speaker will delve into PD's genetic underpinnings, recent discoveries, and effective management strategies. Learn how genetic insights can influence health decisions and gain practical advice on managing PD.
Speaker: Thomas Gasser, MD, PhD, Hertie-Institute for Clinical Brain Research, Tübingen, Germany
Host: Parkinson Society British Columbia (PSBC)
Registration webpage:
https://www.parkinson.bc.ca/events/education-events/global-symposium-series-september-2024/genetics-registration/ The webinar recording may be posted to the PSBC YouTube channel:
https://www.youtube.com/user/ParkinsonSocietyBC **********************
Saturday, September 7, 8am
South Florida Parkinson's Symposium Description: Expert speakers will discuss Parkinson's symptoms, treatments, and progression as well as important factors in helping live your best life, including diet, exercise, and staying connected.
Multiple speakers
Host: Parkinson's Foundation (PF)
Registration webpage:
https://secure3.convio.net/prkorg/site/Calendar?id=113431&view=RSVP We have no information about recording this event.
********************
Saturday, September 7, 10-11:30am
Parkinson's 101 Audience: Newly Diagnosed
Description: The speaker will discuss what Parkinson's is and is not and why it is difficult to diagnose.
Speaker: Sara Batya, MD, movement disorders specialist, PeaceHealth Neurology, Springfield, OR
Host: Parkinson's Resources of Oregon (PRO)
Registration webpage:
https://www.eventbrite.com/e/parkinsons-101-virtual-registration-940014206797 The webinar recording may be posted on the Parkinson's Resources of Oregon YouTube channel:
https://www.youtube.com/user/parkinsonsresources ********************
Monday, September 9 and 16, 11am-12:30pm
Advanced [PD] Stage Family Caregiver Workshop Audience: Parkinson's family caregivers
Note: This is a two-day workshop for family caregivers – September 9 and September 16. Space is limited. Please plan to attend both days.
Description: On day one, the speaker will discuss medical concerns, cognitive and emotional challenges of advanced PD. On day two, the first speaker will help attendees understand hospice care for people with PD. The second speaker will discuss what legal paperwork should be completed, long term care basics, power of attorney, and Medicaid planning.
Speaker for September 9:
Lauren Talman, MD, movement disorders specialist, Oregon Health & Science University, Portland, OR
Speakers for September 16:
James Knoll, LCSW, Providence Hospice-Hospice, Portland, OR
Meredith L. Williamson, JD, NW Estate Law, LLC, Beaverton, OR
Host: Parkinson's Resources of Oregon (PRO)
Registration webpage:
https://www.eventbrite.com/e/advanced-stage-family-caregiver-workshop-online-tickets-929768852667 The webinar recording may be posted on the Parkinson's Resources of Oregon YouTube channel:
https://www.youtube.com/user/parkinsonsresources ********************
Monday, September 9, 12pm
Topic Unknown (at the time this list was prepared)
No description available. This webinar is part of the "Everything Parkinson's" monthly series. The topic may not be specific to PD, though the host organization is PD-focused.
Host: Pacific Movement Disorders Center, Pacific Neuroscience Institute (PNI), Santa Monica, CA
At the meeting time, use the link to join:
bit.ly/PD-Webinars Webinar ID: 821 8048 1494
Telephone: 669-900-6833
Questions? Contact Giselle Tamula,
[email protected], 310-582-7433
The webinar recording will be posted on the Movement Disorders section of the PNI Health and Wellness webinars page:
https://www.pacificneuroscienceinstitute.org/resources/webinars/ ********************
Monday, September 9, 5pm
A Prescription for Ending Parkinson's Disease Description: A health and fitness coach will talk about how diet and nutrition modification can help you better manage your PD symptoms.
Part of the Meet the Expert webinar series.
Speaker: Jennifer Gryniewicz, owner, Time For You Fitness
Host: Northwest Parkinson's Foundation (NWPF)
Registration webpage
https://us02web.zoom.us/webinar/register/WN_wsPkr9DETDaF9Suv3kc8CQ?#/ The webinar recording will be posted to the NWPF Video Library:
https://nwpf.org/resources/video-library/ ********************
Thursday, September 10, 10am
Non-Motor Symptoms Description: The speaker will explain the "non-motor" changes your body is experiencing in relation to your PD. Part of the "PDLER" series.
Host: Banner Health
Registration webpage:
https://www.bannerhealth.com/calendar/event-detail?id=MIH0050W&sessionId=MIH0050W This webinar will not be recorded.
********************
Tuesday, September 10, 4pm
Chat with the Champions Audience: Young Onset PD (YOPD)
Description: Hear from members of the YOPD community who, despite their diagnosis, have managed to successfully optimize their athletic performance and continue to inspire others with their drive and determination. Learn about what focuses and motivates them. Hear about their day to day physical and emotional challenges. Learn how to live well and continue to grow and achieve with PD.
Speakers:
Jimmy Choi, endurance athlete, motivational speaker, Parkinson advocate
Todd Vogt, world rowing champion, paralympian rower
Keri Shaw, athlete, Davis Phinney Foundation PD Ambassador
Host: Young Onset Parkinson's Network (YOPN)
Registration webpage:
https://yopnetwork.org/event-5820619/ The webinar recording will be posted to the YOPN website:
https://yopnetwork.org/Speaker-Series ********************
Tuesday, September 10, 4pm
Lewy Body Dementia No description available. Part of the quarterly Conversations with a Doc webinar series.
Speaker: Paul Fishman, MD, University of Maryland School of Medicine
Host: Maryland Association for Parkinson's Support (MAPS)
Registration webpage:
https://www.marylandparkinsonsupport.org/events/conversations-with-a-doc/ The webinar recording may be posted to the MAPS YouTube channel:
https://www.youtube.com/channel/UC5O_ucE_rDWc3FWYnUonFvw ********************
Wednesday, September 11, 10am
Addressing the Challenge of Apathy in Parkinson's Description: Apathy can be frustrating for people with Parkinson's. It can make it difficult to maintain interest in daily activities and to effectively manage PD symptoms. It can also be frustrating for care partners and loved ones, so understanding it as a symptom of PD and finding ways to cope with it are key to ensuring a good quality of life. Part of the Wellness Wednesday webinar series.
Speaker: Aaron C. Malina, PhD, Northwestern Medicine-Lake Forest Hospital, Lake Forest, IL
Host: Parkinson's Foundation (PF)
Registration webpage:
https://secure3.convio.net/prkorg/site/Calendar?id=113790&view=RSVP& The webinar recording may be posted to the Wellness Wednesday playlist of the PF YouTube channel:
https://www.youtube.com/playlist?list=PLDGRDRM479GuzZjOzPl6Pm8MpwoGfIEpu ********************
Wednesday, September 11, 12pm
Advocate for the Parkinson's Community on the National Day of Action Description: Learn about the policy priorities for the National Day of Action on September 17, what they mean for the Parkinson's community, and how you can get involved.
Speaker: Amy Becker, advocacy director, The Michael J. Fox Foundation
Host: Brian Grant Foundation (BGF)
Registration webpage:
https://us02web.zoom.us/webinar/register/WN_V8bTbfxgRJ-vOocl1F2r8A#
The webinar recording will be posted to the BGF YouTube channel:
https://www.youtube.com/channel/UCFrXMx8ij2LdZtjOevZ1R2w ********************
Wednesday, September 11, 1pm
Understanding and Treating [PD] Psychosis Description: An old age psychiatrist will demystify psychosis, explore its impact on those living with Parkinson's, and provide practical guidelines on when and how treatment should be administered.
Speaker: Ross Dunne, MD, Greater Manchester Dementia Research Centre, Manchester, England
Host: Parkinson Society British Columbia (PSBC)
Registration webpage:
https://www.parkinson.bc.ca/events/education-events/global-symposium-series-september-2024/psychosis-registration/ The webinar recording may be posted to the PSBC YouTube channel:
https://www.youtube.com/user/ParkinsonSocietyBC **********************
Thursday, September 12, 11am
How Neuropalliative Care can Improve Quality of Life for People with Parkinson's Description: Learn about palliative care. Also known as supportive care, it is a holistic approach that addresses physical, social, emotional, and spiritual needs — and can help improve quality of life for individuals with PD and their family.
Speakers:
Jessica Besbris, MD, Cedars-Sinai, Los Angeles
Emily Downing-Mahli, NP, Cedars-Sinai, Los Angeles
Host: Parkinson's Community Los Angeles (PCLA)
Registration website:
https://us02web.zoom.us/meeting/register/tZIldeCopzopGtx8gUANbvFEqzY-yR4xYvhg#/ The webinar recording will be posted to the PCLA YouTube channel:
https://www.youtube.com/channel/UC-J9ub04IQxlSliKrTQ6nOQ/videos ********************
Saturday, September 14, 7-11am
Georgia Chapter Parkinson's Symposium Description: Hear about ongoing research, current treatments, and resources available to help you live your best life with Parkinson's.
Multiple speakers
Host: Parkinson's Foundation (PF)
Registration webpage:
https://secure3.convio.net/prkorg/site/Calendar?id=112290&view=RSVP We have no information about recording this event.
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Sunday, September 15, 10am
PERSEVERE Clinical Trial Audience: Women with PD
Description: The principal investigator of the PERSEVERE study will provide an overview and answer questions. PERSEVERE is testing an educational program for family caregivers of people with Parkinson's Disease and cognitive impairment to learn whether it improves caregiver knowledge, confidence, strain, and health outcomes – and whether it helps people living with Parkinson's or Lewy Body Dementia.
Speaker: Jori Fleisher, MD, Rush University
Host: Twitchy Woman
Only women with PD should participate. Registration webpage:
https://us02web.zoom.us/meeting/register/tZYpdeiqpjkrG9ZbE2IXsgz2lsc8qYS5efWs#/
The webinar recording will be posted to the Events page of the Twitchy Woman website:
https://twitchywoman.com/events/ ********************
Monday, September 16, 11:30am
The importance of the gut-brain axis in Parkinson's Description: A researcher who investigates the relationship between gastrointestinal symptoms and the microbiome in Parkinson's disease will share what is known.
Speaker: Filip Scheperjans, MD, PhD, Helsinki University Hospital, Finland
Host: No Silver Bullet 4 PD
Registration webpage:
https://www.eventbrite.co.uk/e/the-importance-of-the-gut-brain-axis-in-parkinsons-by-dr-f-scheperjans-tickets-1001676731067 A webinar recording may be posted to the No Silver Bullet 4 PD YouTube channel:
https://www.youtube.com/channel/UCN2A0vGOY6j13Ed1rV64gPQ ********************
Wednesday, September 18, 9am and 12pm
Exoband: What is it and How can it Help Me [with PD]? Audience: Young Onset
Description: The creators of the ExoBand talk about this exoskeleton that leads to functional improvement in walking for the PD community. A study demonstrating the effectiveness of Exoband was published in the Journal of Neuromuscular Diseases in 2024. Read the results:
https://pubmed.ncbi.nlm.nih.gov/38788086/. Part of the Lunch and Learn webinar series.
Speakers:
Fausto Panizzolo, PhD, inventor of ExoBand, founder and CEO, Moveo
Claudio Semplicini, MD, PhD, medical and scientific director, Moveo
Host: Young Onset Parkinson's Network (YOPN)
Registration webpages:
https://yopnetwork.org/event-5829552 - 9am Session
https://yopnetwork.org/event-5829553 - 12pm Session
The webinar recording will be posted to the YOPN website:
https://yopnetwork.org/Speaker-Series ********************
Wednesday, September 18, 10am
Teamwork in Action: Maximizing Movement & Function in Parkinson's Description: Understand how rehabilitation professionals, including physical therapists, occupational therapists, speech-language pathologists and others work together to maximize functional abilities and quality of life for individuals with Parkinson's, including managing symptoms, utilizing assistive devices, and coping with the physical impact of PD. Part of the Wellness Wednesday webinar series.
Speaker: Terry Ellis, PT, PhD, Boston University
Host: Parkinson's Foundation (PF)
Registration webpage:
https://secure3.convio.net/prkorg/site/Calendar?id=112951&view=RSVP The webinar recording may be posted to the Wellness Wednesday playlist of the PF YouTube channel:
https://www.youtube.com/playlist?list=PLDGRDRM479GuzZjOzPl6Pm8MpwoGfIEpu ********************
Wednesday, September 18, 3pm
Sleep Disorders [in PD] Description: The speaker will delve into the intricacies of sleep disorders related to Parkinson's disease, sharing the latest developments in understanding and managing these issues. Discover valuable insights and practical tips to improve sleep and quality of life for those with PD.
Speaker: Okeanis Vaou, MD, movement disorders specialist, University of Texas Health, San Antonio
Host: Parkinson Society British Columbia (PSBC)
Registration webpage:
https://www.parkinson.bc.ca/events/education-events/global-symposium-series-september-2024/psychosis-registration/ The webinar recording may be posted to the PSBC YouTube channel:
https://www.youtube.com/user/ParkinsonSocietyBC **********************
Thursday, September 19, 9am
A Conversation on Parkinson's-Related Hallucinations and Delusions Description: An expert panel will discuss what hallucinations and delusions can look like in Parkinson's, how to talk about them with loved ones and doctors, and what medication and non-medication strategies may help you and your care partners ease these symptoms. Part of the Third Thursday webinar series.
Multiple speakers
Host: Michael J. Fox Foundation (MJFF)
Registration webpage:
https://www.michaeljfox.org/webinar/conversation-parkinsons-related-hallucinations-and-delusions The webinar recording is available on the MJFF YouTube channel:
https://www.youtube.com/watch?v=I75k8QJ7xI4 ********************
Thursday, September 19, 11:30am-1pm
Resources for Veterans with Parkinson's Disease Audience: Veterans with PD
Description: The speakers will explore the extensive resources and dedicated support services that veterans with PD have access to through the VA and the Parkinson's Foundation.
Speakers:
Gretchen Glenn, LCSW, Philadelphia PADRECC
Thomas A. Holley (ret), Veterans Service Representative
Host: Parkinson's Foundation (PF)
Registration webpage:
https://secure3.convio.net/prkorg/site/Calendar?id=114509&view=RSVP The webinar recording may be posted to the Wellness Wednesday playlist of the PF YouTube channel:
https://www.youtube.com/playlist?list=PLDGRDRM479GuzZjOzPl6Pm8MpwoGfIEpu ********************
Tuesday, September 24, 9:30am
Why is it So Hard to Get a Good Night's Sleep with Parkinson's Disease? Description: The speaker will share his knowledge and expertise helping those living with Parkinson's disease to find a better night's sleep.
Speaker: Lawrence M. Stein, MD, Privia Health, Falls Church, VA
Host: Parkinson Social Network (PSN)
Registration webpage:
https://us06web.zoom.us/meeting/register/tZIkcuqgqz0oGt2UzpKamspu2OLljeZTO-IL The webinar recording will be posted to the PSN YouTube channel:
https://www.youtube.com/channel/UC04Ff8Ems9xYrdW7bbaH7Xg ********************
Wednesday, September 25, 8:30am
The Benefits of Urban Poling for Parkinson's Description: Learn the benefits of nordic walking if you have Parkinson's.
Speaker: Joy Cochran, DPT, Owner of JOY Explorations, Wisconsin
Host: Neuro Challenge
Registration webpage:
https://us02web.zoom.us/webinar/register/WN_l9EDzxHiSBWWzXVghNON4g#/ The webinar recording will be posted to the Neuro Challenge YouTube channel:
https://www.youtube.com/neurochallenge ********************
Wednesday, September 25, 10am
Diagnosing Parkinson's Disease Description: The speaker will discuss the clinical method of diagnosing PD, progress that has been made in diagnosing PD, lab tests that can shed light on whether or not you have PD, how to get a test if your doctor hasn't ordered one, the limitations of these tests, and more. Part of the Dr. Gilbert Hosts webinar series.
Speaker: Marie-Helene Saint-Hilaire, MD, movement disorders specialist, Boston University
Host: American Parkinson Disease Association (APDA)
Registration webpage:
https://www.apdaparkinson.org/events/dr-gilbert-hosts-diagnosing-parkinsons-disease/ The webinar recording will be posted to the APDA YouTube channel in the Dr. Gilbert Hosts playlist:
https://www.youtube.com/playlist?list=PLWc6Kqj5B4-KcMCUzYjoQAmhbIA1Chcv1 ********************
Miércoles, 25 de septiembre, 10am
Las mujeres y la enfermedad de Parkinson Descripción: Las mujeres con EP pueden experimentar síntomas y patrones de progresión diferentes en comparación con los hombres. El orador profundizará en estos aspectos de la EP específicos de género, discutirá técnicas de gestión efectivas y brindará información sobre los recursos de apoyo disponibles. Parte de la serie de seminarios web del Miércoles de Bienestar.
Presentadora: Adrienne M. Keener, MD, UCLA
Anfitriona: Parkinson's Foundation (PF)
Inscripción:
https://secure3.convio.net/prkorg/site/Calendar?id=112472&view=RSVP& La grabación del seminario web se publicará en la lista de reproducción del Miércoles de Bienestar en el canal de YouTube de PF:
https://www.youtube.com/playlist?list=PLDGRDRM479Gv1XnsG3fyGQpXfzRPUAFWB ********************
Wednesday, September 25, 12pm
Demystifying Access to Treatments [for PD] Description: There are several advanced therapies available for PD beyond carbidopa/levodopa, but getting insurance authorization can be challenging. A pharmacy specialist will review roadblocks of medication access and tips for overcoming them, including prior authorizations, navigating multiple pharmacies, and overcoming hurdles for your medical team.
Speaker: Ramamohana Jonnala, PRhD, director, specialty pharmacy services, MedStar Health
Host: PMD Alliance
Registration webpage:
https://events.blackthorn.io/en/2EmH006/g/cSZj452wMK/demystifying-access-to-treatments-4a22UUsNR3 The webinar recording may be posted to the PMD Alliance YouTube channel:
https://www.youtube.com/channel/UCm_sAjRqhAaiutx2B9dOqng ********************
Wednesday, September 25, 1pm
Understanding Parkinson's Disease and the Impact of Home Care Description: Hiring in-home care can provide a sense of independence and dignity to Parkinson's patients, while also offering respite and education for caregivers. The speaker will discuss these impacts of in-home care and whether it is right for your PD caregiving situation.
Speaker: Rachael Stout, RN, director of nursing, BrightStar Care,
Host: Neuro Challenge
Registration webpage:
https://us02web.zoom.us/webinar/register/WN_l9EDzxHiSBWWzXVghNON4g#/ The webinar recording will be posted to the Neuro Challenge YouTube channel:
https://www.youtube.com/neurochallenge ********************
Friday, September 27, 7-10am
Learn More. Live Better. Parkinson's Symposium Description: This program will provide you with information to help you find the balance between a proactive approach and wondering what lies ahead.
Speakers:
Jay Arthur van Gerpen, MD, Neurology Consultants of Huntsville
Brandi Mason Ivey, M.Ed, CPPN, Huntsville Hospital Parkinson's Care Clinic
Carolina Parker, MD, UAB Heersink School of Medicine, Birmingham, AL
Host: Parkinson's Foundation (PF)
Registration webpage:
https://secure3.convio.net/prkorg/site/Calendar?id=113710&view=RSVP& We have no information about recording this event.
********************
Friday, September 27, 10:30am
Wellness [with PD] Description: Get moving with a virtual exercise class for parkinsonism led by a physical therapist. Part of the Community Symposium webinar series.
Speaker: Cory Troyer, DPT, UC San Diego
Host: UC San Diego Parkinson and Other Movement Disorders Center
Registration webpage
https://ucsd.zoom.us/webinar/register/WN_f7O928aCSTqlgam7cQZL9Q The webinar recording will be posted to the Community Symposium page of the UC San Diego Movement Disorders Center website:
https://neurosciences.ucsd.edu/centers-programs/movement-disorders/community/symposium.html ********************
Saturday, September 28, 7-9am
Progress & Possibilities Symposium Description: Expand your PD knowledge and learn practical strategies and insights from experts.
Multiple speakers
Hosts:
Parkinson's Foundation (PF)
Struthers Parkinson's Center, Minneapolis, MN
Registration webpage:
https://secure3.convio.net/prkorg/site/Calendar?id=113371&view=RSVP We have no information about recording this event.
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