Denise Dagan www.stanford.edu From:[email protected] To:[email protected],stanfordpdinfo,pdsupportgps-norcal
Wed, Jul 31 at 1:41 PM
The list below is of August 2024 Parkinson's-focused webinars and virtual events with speakers. There are a few notable topics this month but always check out the entire list. You may be struggling with something we haven't highlighted, like Managing Your [PD] Meds (Aug. 18).
- Aug. 6-27, Beat the [PD] Freeze (4-week series)
- Aug. 8, Ambiguous Loss & Parkinson's Disease
- Aug. 13, PD Guide for Hospital Visits
- Aug. 14, Opening Up on Uncomfortable Topics
- Aug. 14, The Experiences of Women with Parkinson's Disease
- Aug. 26, Benefits of Rock Climbing for Parkinson's Disease
There are also a multiple webinars on atypical parkinsonian disorders:
- Aug. 6, Understanding Progressive Supranuclear Palsy (PSP)
- Aug. 7, PD subtypes on Aug. 7
- Aug. 23, Perspectives on Care for PSP and CBS
- Aug. 29, Deep Dive into Multiple System Atrophy (MSA)
Even though the first virtual event isn't until August 5th we encourage you to register NOW for anything of interest. That way, if you aren't able to attend the live event, you will be alerted when the recording is available.
About the list below, unless indicated, all webinars and virtual events are:
Times listed as PT. (We are based in California, after all.)
- One-hour in duration. (Usually, the speaker talks for 30-40 minutes and there's a question-and-answer session for the remaining time.)
- If there is no speaker indicated, the speaker is unknown at the time of this email.
- For a general audience.
- Not focused on a single medication or single, branded treatment. (Those are excluded.)
- Free.
We at Stanford Parkinson's Community Outreach occasionally attend a webinar and share our notes. Notes from excellent PD-focused webinars are often posted to
our blog.
Denise
http://med.stanford.edu/parkinsons.html ********************************************************************************
Monday, August 5, 10am
Parkinson's Music Therapy Speaker: Hope Kumme, NMT
Host: Philadelphia and Richmond Veterans Administration (VA) Parkinson's Disease Research, Education and Clinical Center (PADRECC)
At the meeting time,
use this link to join:
Meeting ID: 227 305 847 316
Passcode: TXmDJU
Telephone: 872-701-0185 (ID: 666 709 920#)
Contact Jessica Kaplan,
[email protected], 804-675-5931, Philadelphia and Richmond VA, with questions.
We have no information about the recording of this event.
********************
Monday, August 5, 12pm
Topic Unknown (at the time this list was prepared)
No description available. This webinar is part of the "Everything Parkinson's" monthly series. The topic may not be specific to PD, though the host organization is PD-focused.
Host: Pacific Movement Disorders Center, Pacific Neuroscience Institute (PNI), Santa Monica, CA
At the meeting time,
use this link to join:
Webinar ID: 821 8048 1494
Telephone: 669-900-6833
Questions? Contact Giselle Tamula,
[email protected], 310-582-7433
The webinar recording will be posted on the Movement Disorders section of the PNI Health and Wellness webinars page:
https://www.pacificneuroscienceinstitute.org/resources/webinars/ ********************
Tuesday, August 6, 10:00am
Navigating Safely and Steadily at Home Description: The speaker will provide tips to improve stability and movement in the home, including moving in bed, rising from a chair, reducing falls and improving independence. Part of the "Let's Keep Moving With APDA" webinar series.
Moderator: Teresa Baker, PT, DPT
Speaker: Nick Wendel, PT, DPT
Host: American Parkinson Disease Association (APDA) Virginia
Registration webpage:
https://www.apdaparkinson.org/events/navigating-safely-steadily-at-home/ The webinar recording may be posted to the Let's Keep Moving with APDA Playlist on YouTube:
https://www.youtube.com/watch?v=vHl33tE2suw&list=PLWc6Kqj5B4-IebsCyBA_dlIbNcFAhN7OO ********************
Tuesday, August 6, 12pm
Understanding Progressive Supranuclear Palsy (PSP) Description: The speaker will delve into the symptoms, diagnosis process, and complications of PSP, as well as current treatment options and ones that may be available soon.
Speaker: David Shprecher, DO, Msci, movement disorder specialist, Banner Health, Sun City, AZ
Host: PMD Alliance
Registration webpage:
https://events.blackthorn.io/en/2EmH006/g/er1E4TcX7j/understanding-progressive-supranuclear-palsy-psp-4a22UUfEwq/overview The webinar recording may be posted to the PMD Alliance YouTube channel:
https://www.youtube.com/channel/UCm_sAjRqhAaiutx2B9dOqng ********************
Tuesday, August 6, 13, 20, 27, 1-1:45pm
Beat the Freeze Description: In this four-part series doctors of physical therapy will discuss: week 1 - why people with Parkinson's freeze, week 2 - how to use cueing strategies to reduce freezing and how to break a freeze when they occur, week 3 - the increased chance of freezing when multitasking and cognitive challenges to keep your brain nimble, and week 4 - strategies for reducing and overcoming freezing incidents in real world scenarios as well as home modifications to reduce freezing. Part of the "Beyond Medication Wellness Series." This is not meant to be a drop-in program as information in each class will build upon the other.
Speakers:
Nate Coomer, DPT, founder, Parkinson's Fitness Project and Daily Dose PD
Jennie Allex, DPT, Parkinson's Fitness Project
Host: APDA Northwest (APDA NW)
Registration website:
https://www.apdaparkinson.org/community/resources-support/beyond-medication-wellness-series/ We have no information about the recording of this event.
*******************
Tuesday, August 6, 3pm
Beyond the Tremors Description: The speaker will delve into how allied healthcare professionals, including physiotherapists, occupational therapists, and speech-language pathologists, can play a crucial role in enhancing the management of these symptoms for individuals with Parkinson's.
Speaker: Anish Kanungo, PhD, MD, movement disorders specialist, University of British Columbia
Host: Parkinson Society British Columbia (PSBC)
Registration webpage:
https://www.parkinson.bc.ca/events/education-events/beyond-the-tremors-august-2024/ The webinar recording may be posted to the PSBC YouTube channel:
https://www.youtube.com/user/ParkinsonSocietyBC **********************
Wednesday, August 7, 10am
Understanding Deep Brain Stimulation and MRI Guided Focused Ultrasound (HIFU) Description: Learn about DBS as a treatment option for Parkinson's disease, essential tremor and dystonia and HIFU as a treatment for essential tremor.
Speaker: Katherine Baich-Colon, RN, BSN, nurse navigator, Hartford Neurosurgery
Host: Hartford Healthcare, Hartford, CT
Registration webpage:
https://hartfordhealthcare.org/health-wellness/classes-events/event-details?id=2656&occ=306655 This webinar is offered monthly and is not recorded.
********************
Wednesday, August 7, 10am
Parkinson's 101: What You and Your Family Should Know Audience: Newly Diagnosed
Description: This program offers an introduction and basic overview of Parkinson's disease. Part of the "Wellness Wednesday" webinar series.
Speaker: Christopher Tolleson, MD, MPH, University of Tennessee, Knoxville, TN
Host: Parkinson's Foundation (PF)
Registration webpage:
https://secure3.convio.net/prkorg/site/Calendar?id=112994&view=RSVP& The webinar recording may be posted to the Wellness Wednesday playlist of the PF YouTube channel:
https://www.youtube.com/playlist?list=PLDGRDRM479GuzZjOzPl6Pm8MpwoGfIEpu *******************
Wednesday, August 7, 12pm
Decoding Parkinson's Subtypes Description: The speaker will discuss Parkinson's subtypes and what they mean for people living with Parkinson's today.
Moderator: Polly Dawkins, executive director, Davis Phinney Foundation
Speaker: Alberto Espay, MD, University of Cincinnati Health
Registration webpage:
https://davisphinneyfoundation.org/event/live-webinar-decoding-parkinsons-subtypes/ The webinar recording may be posted to the DPF YouTube channel:
https://www.youtube.com/@davisphinneyfdn/featured ********************
Thursday, August 8, 10am
Ambiguous Loss & Parkinson's Disease No description available. Part of the "PDLER" series.
Host: Banner Health, Phoenix, AZ
Registration webpage:
https://www.bannerhealth.com/calendar/event-detail?id=MIH0050V&sessionId=MIH0050V This webinar will not be recorded.
********************
Friday, August 9, 11am
Making the Case for Nutrition and Exercise in Parkinson's Description: The speaker will talk about how he used his knowledge from litigating head trauma cases to identify vigorous aerobic exercise and a brain-healthy diet in mitigating the effects of Parkinson's in his own life. He recently authored book of fiction, "Parkinsonian Democracy."
Speaker: Jerry Hurtubise, author, person with Parkinson's, trial attorney
Host: Parkinson's Community Los Angeles (PCLA)
Registration website:
https://us02web.zoom.us/meeting/register/tZwtcuGgrz4qG9ZJtnQg3SkVr17OV7QuYJ9l The webinar recording will be posted to the PCLA YouTube channel:
https://www.youtube.com/channel/UC-J9ub04IQxlSliKrTQ6nOQ/videos ********************
Saturday, August 10, 8-11am
Learn More. Live Better. Parkinson's Symposium Description: This program will provide information to help find the balance between a proactive approach and wondering what lies ahead.
Speakers:
Marissa Dean, MD, University of Alabama, Birmingham, AL
Ruth K Fredericks, MD, St. Dominic Neuroscience Center, Jackson, MS
Laurie Mischley, ND, PhD, MPH, Seattle Integrative Medicine, Seattle, WA
Host: Parkinson's Foundation (PF) Gulf Coast
Registration webpage:
https://secure3.convio.net/prkorg/site/Calendar?id=113630&view=RSVP& We have no information about recording this event.
********************
Monday, August 12, 5:30pm
A Prescription for Ending Parkinson's Disease Description: The speaker will discuss the effects of industrialization on human health, how it relates to Parkinson's disease, and what can be done to prevent and put an end to this progressive, neurodegenerative disease. Part of the "Meet the Expert" webinar series.
Speaker: Ray Dorsey, MD, neurologist, University of Rochester Medical Center, and co-author of "A Prescription for Action: Ending Parkinson's Disease"
Host: Northwest Parkinson's Foundation (NWPF)
Registration webpage
https://us02web.zoom.us/webinar/register/WN_5BbXtW8ISEiCP8EinUexbg The webinar recording will be posted to the NWPF Video Library:
https://nwpf.org/resources/video-library/ ********************
Tuesday, August 13, 12pm
Working Out Symptoms: Exercise's Impact on Parkinson's Description: Learn what types of exercises are recommended specifically for PD. The speaker will share insights and expert tips to help you ease into a workout routine suited to your needs.
Speaker: Sanskriti Sasikumar, MD, FRCPC, University of Toronto, Canada
Host: PMD Alliance
Registration webpage:
https://events.blackthorn.io/en/2EmH006/g/er1E4TcX7j/working-out-symptoms-exercises-impact-on-parkinsons-4a22UUgk6U/overview The webinar recording may be posted to the PMD Alliance YouTube channel:
https://www.youtube.com/channel/UCm_sAjRqhAaiutx2B9dOqng ********************
Tuesday, August 13, 4pm
Future Proofing Today's Home for Tomorrow's Needs Audience: Young Onset PD
Description: The speakers will talk about good body mechanics, the importance of fall prevention, energy conservation techniques, and home modifications versus remodeling or doing a combination.
Speakers:
Suz Klyber, OT, occupational therapist, CAPS (certified aging in place specialist), Live In Place, Northern VA
Greg Sieb, general contractor, CAPS (certified aging in place specialist), Live In Place, Northern VA
Host: Young Onset Parkinson's Network (YOPN)
Registration webpage:
https://yopnetwork.org/event-5774228 The webinar recording will be posted to the YOPN website:
https://yopnetwork.org/Speaker-Series ********************
Tuesday, August 13, 5:30-7pm
PD Guide for Hospital Visits Description: The speaker will walk attendees through the Parkinson's Foundation new Hospital Safety Guide, which supersedes the Aware in Care Hospital Action Plan.
Speaker: Helena Fox, MSG, gerontologist, Parkinson's Foundation Ambassador
Host: PD Active, Berkeley, CA
Registration webpage:
https://us06web.zoom.us/meeting/register/tZ0tdO-vrj0jEt0OvV-AFK5MLyDgDYjekc69 The webinar recording will be posted to the PD Active YouTube channel in the Round Table playlist:
https://www.youtube.com/playlist?list=PLxiZvsi1uIMHsJXYWjuP4Ygxf3vkRk8GC ********************
Wednesday, August 14, 10am
Opening Up on Uncomfortable Topics Description: This webinar will focus on a few of the less talked about challenges of Parkinson's that may lead to social discomfort and ultimately isolation, including drooling, urinary incontinence, dyskinesia and even eating in public. The speaker will discuss how each impacts the person with Parkinson's and address ways to speak to family and friends about how these visible symptoms cause self-consciousness in social situations. Part of the "Wellness Wednesday" webinar series.
Speaker: Taylor Rush, PhD, Cleveland Clinic
Host: Parkinson's Foundation (PF)
Registration webpage:
https://secure3.convio.net/prkorg/site/Calendar?id=113570&view=RSVP& The webinar recording may be posted to the Wellness Wednesday playlist of the PF YouTube channel:
https://www.youtube.com/playlist?list=PLDGRDRM479GuzZjOzPl6Pm8MpwoGfIEpu ********************
Wednesday, August 14, 12pm
The Experiences of Women with Parkinson's Disease Description: Topics include the challenges in receiving a diagnosis, lower rates of referral and uptake of specialty care, hormones, fertility, and pregnancy, care partners for women with Parkinson's, the impact of societal expectations on women with Parkinson's, and financial considerations.
Moderator: Amy Lavallee, Parkinson's Community Liaison, Brian Grant Foundation
Speakers:
Sree Sripathy, co-founder, Women's Parkinson Project, person with YOPD
Maria De Leon, MD, movement disorders specialist (ret.), person with YOPD
Host: Brian Grant Foundation (BGF)
Registration webpage:
https://us02web.zoom.us/webinar/register/WN_omEvdsoeQ6y4-UcUOQNnHQ The webinar recording will be posted to the BGF YouTube channel:
https://www.youtube.com/channel/UCFrXMx8ij2LdZtjOevZ1R2w ********************
Thursday, August 15, 2pm
Exercise for Fewer PD Symptoms and Better Balance Description: The speaker will share strengthening exercises to help reduce PD symptoms and better maintain balance.
Speaker: Nate Coomer, DPT, NCS, physical therapist and owner, Parkinson's Fitness Project
Host: Northwest Parkinson's Foundation (NWPF)
Registration webpage
https://us02web.zoom.us/webinar/register/WN_KlkBDn1tQ_KHPSd6_4S7Ug The webinar recording will be posted to the NWPF Video Library:
https://nwpf.org/resources/video-library/ ********************
Sunday, August 18, 10am
Managing Your [PD] Meds Audience: Women with PD
Description: The speaker will help listeners sort out the cocktail of meds and supplements most people with Parkinson's take throughout the day, including interactions between any of the drugs and/or supplements, should some be taken before or after a meal, how to manage meds while traveling, and more.
Speaker: Hadas Abouaf, RN
Host: Twitchy Woman
Only women with PD should participate. Registration webpage:
https://us02web.zoom.us/meeting/register/tZUvfuqhrzkuHNBG_H-6lCgAPEOjdn5rr5GT The webinar recording will be posted to the Events page of the Twitchy Woman website:
https://twitchywoman.com/events/ ********************
Wednesday, August 21, 9am
Update on New Potential Treatments for Parkinson's No description available
Speaker: Eric Folkens, MD, Bradenton Research Center, Bradenton, FL
Host: Neuro Challenge, Sarasota, FL
Registration webpage:
https://us02web.zoom.us/webinar/register/WN_F1Zowo5jRX-aDBuorgbL5g#/ The webinar recording will be posted to the Neuro Challenge YouTube channel:
https://www.youtube.com/neurochallenge ********************
Wednesday, August 21, 10am
Speech & Swallowing in Parkinson's Description: Most people with Parkinson's disease will experience changes in speech, voice and swallowing at some point during the course of the disease. Learn tools and exercises to help you better understand and manage speech, swallowing and communication problems in PD. Part of the "Wellness Wednesday" webinar series.
Speaker: Carrie McBreen, MS, CCC-SLP
Host: Parkinson's Foundation (PF)
Registration webpage:
https://secure3.convio.net/prkorg/site/Calendar?id=112992&view=RSVP& The webinar recording may be posted to the Wellness Wednesday playlist of the PF YouTube channel:
https://www.youtube.com/playlist?list=PLDGRDRM479GuzZjOzPl6Pm8MpwoGfIEpu ********************
miércoles, 21 de agosto, 4pm
Alimentación basada en plantas para la salud del cerebro Descripcion: Aprenda consejos prácticos para optimizar su bienestar y calidad de vida.
Oradoras:
Aifra Ruiz, coach de salud
Mare Gomez-Bolaños, coach de salud
Anfitriona: PMD Alliance
Inscripción:
https://events.blackthorn.io/en/2EmH006/g/ec9PeP9HTv/alimentacion-basada-en-plantas-para-la-salud-del-cerebro-4a22UUgoLN/overview La grabación del seminario web se publicará en el canal de YouTube de PMD Alliance:
https://www.youtube.com/@PMDAlliance/featured ********************
Friday, August 23, 10:30am
Perspectives on Care for PSP and CBS Description: A movement disorder specialist will discuss current perspectives on care for progressive supranuclear palsy (PSP) and corticobasal syndrome (CBS).
Speaker: Irene Litvan, MD, UC San Diego
Host: UC San Diego
Registration webpage
https://uchealth.zoom.us/webinar/register/WN_FJI0g7bqTmiRVnBiyM2n7w The webinar recording will be posted to the Community Symposium page of the UC San Diego Movement Disorders Center website:
https://neurosciences.ucsd.edu/centers-programs/movement-disorders/community/symposium.html ********************
Monday, August 26, 12pm
Benefits of Rock Climbing for Parkinson's Disease Description: Learn how rock climbing provides multiple health benefits to people living with Parkinson's. Hear from people with PD who rock climb and how they have improved their physical strength, balance, mental acuity…and have a whole lot of FUN!
Speakers:
Molly Cupka, President of the national organization, Up ENDing Parkinson's
Mercedes Friend, DPT, Edgeworks Climbing & Fitness Gym, Seattle, Bellevue, and Tacoma
Host: Northwest Parkinson's Foundation (NWPF)
Registration webpage
https://us02web.zoom.us/webinar/register/WN_s3JZlWPoRNqWrLRTnd4zLQ The webinar recording will be posted to the NWPF Video Library:
https://nwpf.org/resources/video-library/ ********************
Miércoles, 28 de agosto, 10am
Comprendiendo el dolor en la enfermedad de Parkinson Descripción: Un especialista en trastornos del movimiento analizará varios tipos de dolor asociados con la enfermedad de Parkinson, incluido cómo el dolor afecta la calidad de vida general de las personas afectadas por la enfermedad de Parkinson y estrategias prácticas para el manejo del dolor. Parte de la serie de seminarios web del Miércoles de Bienestar.
Orador: Dr. Daniel Martinez-Ramirez, Tecnológico de Monterrey, Facultad de Medicina y Ciencias de la Salud
Anfitriona: Parkinson's Foundation (PF)
Inscripción:
https://secure3.convio.net/prkorg/site/Calendar?id=112472&view=RSVP& La grabación del seminario web se publicará en la lista de reproducción del Miércoles de Bienestar en el canal de YouTube de PF:
https://www.youtube.com/playlist?list=PLDGRDRM479Gv1XnsG3fyGQpXfzRPUAFWB ********************
Thursday, August 29, 12pm
Deep-Dive into Multiple System Atrophy (MSA) Description: Multiple System Atrophy (MSA) affects balance, movement, and the autonomic nervous system, and, as an atypical parkinsonian neurodegenerative disease, it can be confused for Parkinson's and related conditions. Learn how MSA is diagnosed, symptoms of MSA, current treatment options and those on the horizon.
Speaker: Nikolaus McFarland, MD, PhD, University of Florida, Gainesville, FL
Host: PMD Alliance
Registration webpage:
https://events.blackthorn.io/en/2EmH006/g/er1E4TcX7j/deep-dive-into-multiple-system-atrophy-msa-4a22UUfFW9/overview The webinar recording may be posted to the PMD Alliance YouTube channel:
https://www.youtube.com/channel/UCm_sAjRqhAaiutx2B9dOqng ********************
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